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Leahness

2y ago

Newly Diagnosed with Fibromyalgia - Experiencing Terrible Flare Up

I'm in Michigan and am having a terrible flare up (at least that's what I think it is) - this is a new diagnosis for me. Very tired, achy, hard to concentrate, etc. Is this "normal" and is anyone else experiencing this? Is there anything I can do?

Your answer

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Msgicheyaya

2y ago

I was diagnosed in 2002. A lot of times I thought was a flare I think was just normal Fibro symptoms. I got a REALLY bad flare and was then diagnosed with RA in addition to my lovely Fibro. Def see your dr hopefully get some blood drawn and that will help know what’s going on with you. In the meanwhile be easy on yourself always physically and mentally. Sending gentle hugs 🤗
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lizzy.larbearsgirl

2y ago

I found that my fibromyalgia isn't even an issue when I am taking my antipsychotics (can be used off label, I do have BPD with psychosis though so I take a mood stabilizer and an antipsychotic.) I'm on a very low dose. You can have a few mild side effects at first like dry mouth and hunger but those subside after a while. But no fibromyalgia pain or flares with it! (I have gone periods with trying to not have to take meds at all, and my fibro comes back without the meds and goes away with them)
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dolphinblues

2y ago

Hello. I am sorry you are going through this. I was diagnosed with Fibromyalgia in 2009. What you are describing, to me, sounds like a flare up. Some things I do to reduce the effects of a flare up are pain patches/creams, heat or cold packs (depending on type and location of pain), epsom salt soaks, gentle stretching/yoga, massages, remembering to take frequent breaks and drink lots of water. I hope this helps. You are not alone in this.
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dolphinblues

2y ago

I wish to add, I have had fibromyalgia symptoms since the late 80's.
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Firbo

2y ago

Super sorry you have to go through this! So far for me what you described is my new normal. There are ways to keep from exasperating it. Like not over doing it. It’s a tough balance for sure! I believe you said your in Michigan? if so… The Mayo Clinic isn’t to terribly far. I really thought their Fibromyalgia Clinic was great and super helpful! Let me know if you have any questions I maybe able to answer? Blessings!
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ginkgowink

2y ago

Are you saying you got a new diagnosis of fibromyalgia? I have fibro. Flares are so tough. Sorry you’re feeling so poorly. The biggest thing I’ve found is to rest and not push myself. If I push myself, I either make the flare worse or just stretch it out. My brain fog also gets a lot worse when I push myself. Physical, emotional, and mental rest are all important. Stress can really flare things up too, so trying to avoid stress and manage it with things like meditation and general self-care are really important. Very gentle walks that don’t feel like you’re pushing yourself are good. Gentle stretching (or yoga if you’re up for it) is also really helpful and can keep me from getting super tight and more sore. Some people love hot baths for the aches, especially Epsom salt baths. I use a heating pad regularly and creams like tiger balm or biofreeze can be very helpful too. As you work with your doctor hopefully you can find a medication that helps too. Lengthy, but I hope some of that helps! Let me know if I can help more 🤗
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ginkgowink

2y ago

Oh and as to whether it’s “normal”, that totally depends on the person. For some people their fibro is mild and what you’re describing is a flare up for them. For me, this is my normal and a flare up is a big intensifying of symptoms. I hope it’s just a flare up for you and you go back to feeling more well soon!
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Sheri232

2y ago

Go see your Doctor so he can check you out. Then he may be able to give you a diagnosis.
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Leahness

2y ago

- I have a diagnosis of Fibromyalgia (along with other issues)

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