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Faeeeriee

1y ago

New to the app, looking for advice on fibromyalgia and EDS symptoms

Hiya! I’m brand new to this app but glad to be here. I’m currently experiencing some symptoms that I don’t believe are fibromyalgia related although I’m diagnosed with fibromyalgia and was wondering if anyone could chat to me about this. I’m wondering if I could have symptoms of EDS/hEDS. I’ve been to the doctors but they fobbed me off, so I’m looking to go back soon and try and push for more help again. I use a wheelchair due to my mobility impairment.

Your answer

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EllySmelly

1y ago

I was misdiagnosed with Fibro for a year ish before I was correctly diagnosed with EDS. Send a message if you'd like to chat!
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Faeeeriee

1y ago

You’re all super kind thank you! I’ll reach out later today as it’s stupidly early right now 💕
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Doglover25006

1y ago

I got diagnosed with fibro over 3 years ago and with hEDS in august. I’m happy to talk!
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Brokenbodyclub

1y ago

I’m diagnosed with forms of EDS including hEDS if you send me a chat I would love to talk and maybe help you out a bit!💗
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Bun._.Bun

1y ago

Hey! I was originally diagnosed with fibromyalgia but I didn’t feel it was the correct diagnosis, I finally saw a geneticist and was diagnosed with heds. The geneticist was the first doctor to ever believe there was something more
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KikiJay

1y ago

I can chat if you need to discuss anything!

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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