Coping with a Fibromyalgia Diagnosis

I was diagnosed around 2016-2017 and I was around 12 or 13. I jus wanted to say, no matter our history and what we’re constantly battling beside fibro, we’re as strong as ever and I think that’s inspiring. Every day is a hassle but think about all of the things you accomplished, even jus today !! No matter how small !! I’m very proud of everyone with fibro, I’m so happy I’m not alone. It’s horrible you all feel the pain I do, but you’re all so inspiring and strong !!

Hi! I got diagnosed at about 11. I felt/feel like I’m losing a part of my life since I don’t get to do things most people my age get to do. I really relate to you

also just realized i basically restated my post 🤦‍♀️

i appreciate you all so much 💕 it’s very much a struggle even just accepting the diagnosis even though i’ve suspected it for sometime and have been dealing with it for even longer. i’m so grateful to have found people who understand and provide reassurance

Yep, been there. Look into LDN & don’t be afraid to try out different meds to figure out what works best for you.

It’s especially difficult when I’m struggling to sleep and my mind wanders. But I have more good than bad in life.

I feel the same. I’m 30. Got diagnosed in 2012 but had symptoms and thought I had it before then. I was relieved to have a name to it. And to actually start meds to start feeling better. But at the same time, sad and frustrated that this is a life long thing. I’ve learned to somewhat manage. But I sleep a lot and hate it. I’m still always sore. But some days worse than others. And I try not to think about the future in the sense of pain and Illness. But sometimes my brain wanders and thinks about what pain my future will bring. But I just try to keep on keeping on.

I’m with you. Fighting my way out of that abyss as well. I think together, we can all climb into the light. So grateful I found you guys.

I just got diagnosed as well and am in the same boat..

You’ve got a support group here! You’re not alone. And just because there may be a handful of ‘bad days’ doesn’t mean all those good ones didn’t exist. It’s hard sometimes. I’ll be honest with you - there really is no way of sugar coating Fibromyalgia. It sucks. But there are ways for you to treat it to alleviate the pains you can have more good days than bad ones. My biggest advice for you is to move as much as you can - this alleviates A LOT of my nerve pain. I feared it would do the opposite but really it helps. My other biggest and probably the most important one is to never forget even in those worst days that you can and will get through it. Just listen to your body and if you need rest, rest. If you need sleep, sleep. If you need a hug, go get a hug! It’s not just the physical effects but also the psycho-physiological effects that chronic pain has on your brain.

same here! definitely feel the grief but also a huge wave of relief that i can finally put a name to my issues

Yes! I recently found my downhill ski goggles while cleaning out the storage closet and I felt really sad that I might never use them. I was diagnosed years ago, but the grief still comes in waves. Working to find new hobbies and friends who stick around even though my body sucks. Hang in there. 💗✌🏻

Absolutely! There are a lot of treatment options to help manage it. You’re not in this alone!

Sending love and support!!! ♥️ i relate, there’s a sense of finality to it, I’m relieved to have an answer, but knowing it’s not going away and I gotta plan my life long term for it presents a lot of worries and challenges.