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PrincessBubblegum

817d

I’m 28yo and diagnosed with fibromyalgia literally yesterday. Even though I’ve suspected it for some time and have had symptoms for even longer, actually getting the diagnosis now has me feeling a sort of grief from realizing that this really is something I’ll have to manage and cope with indefinitely. Are there others who can relate?

Top reply
    • PrincessBubblegum

      801d

      i appreciate you all so much 💕 it’s very much a struggle even just accepting the diagnosis even though i’ve suspected it for sometime and have been dealing with it for even longer. i’m so grateful to have found people who understand and provide reassurance

    • Dsparda

      801d

      I was diagnosed around 2016-2017 and I was around 12 or 13. I jus wanted to say, no matter our history and what we’re constantly battling beside fibro, we’re as strong as ever and I think that’s inspiring. Every day is a hassle but think about all of the things you accomplished, even jus today !! No matter how small !! I’m very proud of everyone with fibro, I’m so happy I’m not alone. It’s horrible you all feel the pain I do, but you’re all so inspiring and strong !!

    • Bunny_

      801d

      Hi! I got diagnosed at about 11. I felt/feel like I’m losing a part of my life since I don’t get to do things most people my age get to do. I really relate to you

    • PrincessBubblegum

      801d

      also just realized i basically restated my post 🤦‍♀️

    • PrincessBubblegum

      801d

      i appreciate you all so much 💕 it’s very much a struggle even just accepting the diagnosis even though i’ve suspected it for sometime and have been dealing with it for even longer. i’m so grateful to have found people who understand and provide reassurance

    • Violet_Beauregarde

      801d

      Yep, been there. Look into LDN & don’t be afraid to try out different meds to figure out what works best for you.

    • Scijoe63

      802d

      It’s especially difficult when I’m struggling to sleep and my mind wanders. But I have more good than bad in life.

    • Ameg

      809d

      I feel the same. I’m 30. Got diagnosed in 2012 but had symptoms and thought I had it before then. I was relieved to have a name to it. And to actually start meds to start feeling better. But at the same time, sad and frustrated that this is a life long thing. I’ve learned to somewhat manage. But I sleep a lot and hate it. I’m still always sore. But some days worse than others. And I try not to think about the future in the sense of pain and Illness. But sometimes my brain wanders and thinks about what pain my future will bring. But I just try to keep on keeping on.

    • Scijoe63

      814d

      I’m with you. Fighting my way out of that abyss as well. I think together, we can all climb into the light. So grateful I found you guys.

    • Smash

      815d

      I just got diagnosed as well and am in the same boat..

    • Brie13

      815d

      You’ve got a support group here! You’re not alone. And just because there may be a handful of ‘bad days’ doesn’t mean all those good ones didn’t exist. It’s hard sometimes. I’ll be honest with you - there really is no way of sugar coating Fibromyalgia. It sucks. But there are ways for you to treat it to alleviate the pains you can have more good days than bad ones. My biggest advice for you is to move as much as you can - this alleviates A LOT of my nerve pain. I feared it would do the opposite but really it helps. My other biggest and probably the most important one is to never forget even in those worst days that you can and will get through it. Just listen to your body and if you need rest, rest. If you need sleep, sleep. If you need a hug, go get a hug! It’s not just the physical effects but also the psycho-physiological effects that chronic pain has on your brain.

    • moondust

      817d

      same here! definitely feel the grief but also a huge wave of relief that i can finally put a name to my issues

    • Angellama

      817d

      Yes! I recently found my downhill ski goggles while cleaning out the storage closet and I felt really sad that I might never use them. I was diagnosed years ago, but the grief still comes in waves. Working to find new hobbies and friends who stick around even though my body sucks. Hang in there. 💗✌🏻

    • Lyndsie

      817d

      Absolutely! There are a lot of treatment options to help manage it. You’re not in this alone!

    • PiscesFurMama

      817d

      Sending love and support!!! ♥️ i relate, there’s a sense of finality to it, I’m relieved to have an answer, but knowing it’s not going away and I gotta plan my life long term for it presents a lot of worries and challenges.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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