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Kmlb5464

333d

So I was recently diagnosed with a bunch of things, Fibromyalgia being the biggest one (last monday, only 10 days ago). I can admit that I have thrown myself into all the things to look up and understand my diagnosis. My problem is that my wife thinks I am letting it consume me when my reality is that I just want to understand it. I know I am not my diagnosis, I know I am stronger than Fibromyalgia. I just need to know I'm not crazy for looking into it because my doctor didn't tell me anything other than I have it, no explanation of what it is.

    • AnimalBoy

      333d

      It's definitely normal to look for information about what you might expect to experience and why when you're given a new diagnosis especially if you weren't told anything about it to begin with. Generally it's considered smart to do your own research both because its possible a doctor's information isn't 100% accurate or omits some potentially important information and because it's possible to find at least some coping mechanisms and simple treatments that can help symptom management. It can also be important for you to talk to others with the condition who can help better identify symptoms, share tips, give reviews of medication and other treatment, and talk about all the other topics this app was created to help platform lol

      • Kmlb5464

        333d

        @AnimalBoy That is why I have fallen in love with this app, I've completely done away with all social media (for a lot of reasons) but this platform is so freeing to me. I can lift people up, share stories, and I don't feel alone in my fight anymore.

    • Aiya_the_ill

      333d

      First of all, welcome to this community :) I know how terrifying and frustrating these diagnoses can be, especially when you're not given all the information. You are not crazy for wanting answers. I want you to know that you are never alone in this fight. We are all here for you if you have questions or need support :) Second, it is 100% logical to do your own research. Because I'm a young, my doctors treated me like I was 2 and gave little to no explanation of what my meds do and what my treatment plan is. The best thing you can do right now is educate yourself. Make sure you're getting information from trusted sources so you are properly informed.

      • Kmlb5464

        333d

        @Aiya_the_ill At a previous appointment, my doctor had made the commitment "i hope you don't have fibromyalgia" and my partner was full of "don't let it get to your head, you haven't been diagnosed" and now that I have its "consuming" me I just feel judged. But she'll never understand.

        • Aiya_the_ill

          333d

          @Kmlb5464 it's really hard to effectively communicate just how hard it is to simply exist with fibromyalgia. I mean we are in pain every minute of everyday, I've had people tell me that they would kill themselves if they had even one of my chronic illnesses. People are mainly ignorant surrounding chronic conditions so all of their comments usually mean well. With the last comment, they mean that I've become stronger as I learn to live with my illnesses but it makes it sound like my life isn't worth living which could not be farther from the truth. Everything you're feeling is 100% valid and you have every right to express them to your partner or doctors. Hang in there :)

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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