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Hockeyfan

559d

I was diagnosed with fibro 23 years ago. A year and a half ago I started getting tingling and numbness in my legs and arms and feeling electric zapping mostly in my legs and feet. I had mri’s done as my neurologist thought it could be MS. No lesions found so I’m assuming now it’s fibro? Is this a fibro thing that others deal with? The neurologist was no help at all once I was negative for MS.

Top reply
    • Hockeyfan

      553d

      @Goodvibez thank you for replying! I’m hoping for answers soon too. The fatigue and foggy brain systems are terrible too.

    • Goodvibez

      553d

      Yep, I have those symptoms along with widespread muscle and joint pain. I was diagnosed with fibromyalgia by a rheumatologist a year ago. Hope you get answers soon 🙏

      • Hockeyfan

        553d

        @Goodvibez thank you for replying! I’m hoping for answers soon too. The fatigue and foggy brain systems are terrible too.

    • Mamasboys

      558d

      Hi you may want to consult a rheumatologist. It’s hard to find a good one who will help with fibromyalgia. I take duloxetine which helps with nerve pain and depression.

      • Hockeyfan

        557d

        @Mamasboys thank you for responding! My pcp was sending in a referral to a rheumatologist thankfully. It looks like he has great reviews online so I’m hopeful for some help and answers

        • Mamasboys

          557d

          @Hockeyfan that’s great I hope you get some answers. Have a list of questions ready. Hopefully you can get someone who has experience with fibromyalgia

    • Raquel226

      559d

      Some people have success with gabapentin (medicine), you can ask your doctor or research it.

      • Hockeyfan

        559d

        @Raquel226 thank you! I’m getting a referral to a Rheumatologist again. I haven’t seen one in over 15 years so I’m sure there have been some advancements since then. I appreciate your advice

        • Raquel226

          559d

          @Hockeyfan of course any time, I hope you feel better. Another thing that I had to learn to prioritize was sleep, and I know that can be hard. I personally have benefited a lot from it, so you might want to try that too. Good luck!

    • Raquel226

      559d

      I have it too but we always associated it with my epilepsy, so I can't tell you for sure. I'm sorry.

      • Hockeyfan

        559d

        @Raquel226 it was a new thing after all these years so I’m not sure if I push to get answers or blame fibro at this point 🤷‍♀️ always a guessing game it feels like

        • Raquel226

          559d

          @Hockeyfan I can relate. My symptoms also didn't start for well over a decade after my fibromyalgia diagnosis. It's all kind of a guessing game and hard to get doctors that listen. Be your own advocate is my advice.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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