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Abby0427

616d

I’ve joined support groups for GP but I don’t feel like they help. I haven’t seen anyone similar to me and if anything scrolling through them terrify the fuck out of me to the point of just bawling. All this has driving my mental and I’d say physical health into the ground and I’m just confused frustrated and terrified and have no idea what to do.

    • CoffeeAndDogs

      614d

      All forms of Dysautonomia can be a crapshoot trying to find info and support. Symptoms can be mild to severe and the knowledge and support needed can be vastly different. I'd be happy to help in any way I can. I'm very well versed in GP and have been dx with a non-GP motility disorder for over 5 years. I'd say most of GP treatment and management consists of 1) nutrition and hydration 2) nausea and symptom management (diarrhea, constipation, pain, etc).

      • Abby0427

        614d

        @CoffeeAndDogs thank you, I really appreciate it

    • 1stMayflowers

      614d

      I'm feeling similarly! I am also diabetic, diagnosed ages ago. I was hospitalized for about a week while they taught me how to care for myself. But this...the freaking doctor told me and then basically kicked me out of the hospital within about 30 minutes. He even told the nutritionist we were in a hurry!! NO, I WAS NOT! I have a diabetes educator/nutritionist I see who I know will be a great help, but that appointment isn't until the end of July. So for now I'm stuck learning by trial and error. It's scary. I also feel worse overall than when I went to the ER a week ago. I can eat again, but I'm having some reactions to the Reglan, and possibly to the radioactive contrast they used for the tests in hospital. My tears burn my skin!! WTH? So, the tears I've cried because of pain, frustration, and fear also hurt! I have found two things that so far seem to be helping without complications--a gentle walk after dinner, and abdominal massage. You have to do the massage in the correct direction, but it's super easy. I don't know if I can link here...If you Google "gastroparesis massage", you should find a link that goes to a lyme disease site. Apparently lyme is a cause for gastroparesis.

      • Abby0427

        614d

        @1stMayflowers thank you❤️ I don’t know if it’s completely true but I saw something that ehlers danlos syndrome is linked but not studied enough and I also have that

        • CoffeeAndDogs

          614d

          @Abby0427 Idiopathic Gastroparesis is caused by autonomic nervous system dysfunction (Dysautonomia). Both Gastroparesis and EDS are forms of Dysautonomia so there is correlation and oftentimes one form puts you at a higher incidence of multiple forms.

        • 1stMayflowers

          614d

          @Abby0427 oh! Hmm..based on what I know (virtually nothing) about ehlers danlos, that seems like it would make sense.

    • xxARYN420xx

      616d

      I joined a support group on snapchat

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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