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Noodlemum

769d

Do you guys ever have moments where you're feeling lazy and terrible about yourself, and then it hits you that literally no one else in your life experiences pain at every waking and sleeping second like you do? And that it's so understandable that you can't do the things normal people can. .. and for them to expect you too is like expecting a man with two broken legs to climb a ladder 20 stories high...

Top reply
    • Kate88

      731d

      I have never related to anything more. I feel like this all the time when I have to cancel plans using my lower back/pelvic pain as an excuse. It can become extremely isolating and feel like no one understands

    • Kate88

      731d

      I have never related to anything more. I feel like this all the time when I have to cancel plans using my lower back/pelvic pain as an excuse. It can become extremely isolating and feel like no one understands

    • Maryam

      766d

      Yes I have days when I feel sleepy all day. On those days I don't feel like doing anything.

    • Waffles04

      767d

      Yea, I think about this frequently. Most times it makes me kind of sad because I feel behind or that I’m not doing enough. But a lot of days I’m surprised from peoples reactions about very normal things not making them hurt or dizzy

    • WellBuddy

      769d

      Yes! And I feel guilty too :(

    • anemone

      769d

      there might be others too. sometimes people are feeling that pain but hiding it or ignoring it. for many years i had back pain but told myself it was "nothing" because my dad has worse chronic back pain... now here i am more than a year into applying for disability ::v but i am always astounded when i ask friends about the pain, or when i talk about my pain and they're surprised, that kind of stuff. i ask my partner a lot just to confirm. "that... doesn't hurt you? you're not feeling pain from that?" and it's always "nope, no pain". always confusing. i think the reason it ends up so confusing though, is that i don't trust my own experience? like, all the time it's "oh this didnt hurt as much as i expected, i must not have pain" or "maybe everyone has pain like this but they just ignore it and it's part of their normal life" ... it's kinda stupid when i think rationally about it, but not being able to know others' experience (and not being able to process those differences as normal variation within people) means it's tough to think about from any angle

      • moonchild86

        768d

        @anemone I can relate to this so much. For years I tried to brush off my back pain. Now I'm also filing for disability because I can barely walk half the time without being in so much pain. My legs are even starting to give out on me. 😥

        • anemone

          766d

          @moonchild86 have you tried using mobility aids? they can change the way pressure is put on your hips and lumbar spine, and that might help alleviate some of the issues you have with walking. some options that keep you walking would be a cane (does minor modifications but i was astounded how much easier walking felt immediately), forearm crutches (good if you don't have joint issues or arm pain issues? i have less experience with this one), and rollators (like a walker but cool, usually has a built-in seat, handbrakes, better grips, etc). you might also try physical therapy if you haven't and can manage... they can teach you stretches to alleviate pain and exercises that will improve your pain levels on a whole, plus they can recommend/advise on mobility aids if you ask. it may not SOLVE the problem but it can make it more bearable at least. and good luck with filing for disability! i HIGHLY recommend getting a lawyer FIRST (yes even if you think you can't afford it, many will take pay as a percentage of your backpay) and taking a look at the website "how to get on"... has a lot of good info on applying and i wish i'd known about it before i applied

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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