Feeling Invalidated and Helpless with Pseudoseizures

For sure I’ve felt this. For awhile I had a boss that was not understanding and a coworker that was telling me I was faking it... don’t worry I quit right after that incident. I started having my seizures and had a 7 day EEG done and when my neurologist diagnosed me I didn’t feel it was the right diagnosis. The more I research and understand other people’s experiences I do accept that I do have seizures. I just hate that they are called pseudoseizures because then it sounds like they are fake when in all reality it’s absolutely terrifying

Oh my gosh, YES!!!!

I felt like I was faking it for the longest time. It took my neurologist telling me that this was something I had no control of and that something in my psychology causing them that I felt a little better about it. He also affirmed that they were "real" seizures, just not epileptic. It wasn't until my neurologist spoke with my parents that they truly believed they were real too.

yes all the time. whenever i have one my parents just ask me what i did to cause it. as if we’re in control 😒 but we’re not, and it’s so frustrating!

Yeah I vomit and have had seizure activity presence on EEG's but I still get treated as if I'm to blame for everything.Yet I've been in a car accident and had a long pstd episode and be fine. The Er never asks about my mental state and I generally get ignored.