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Brainy_potato

776d

Does anyone else feel invalidated and like it’s your own fault for not being able to control pseudoseizures?

Top reply
    • katieliz

      756d

      @IsaHope the whole “not real seizures” is so hard for me it makes me feel like I’m faking it for attention

    • MaddieDanielsen

      770d

      For sure I’ve felt this. For awhile I had a boss that was not understanding and a coworker that was telling me I was faking it... don’t worry I quit right after that incident. I started having my seizures and had a 7 day EEG done and when my neurologist diagnosed me I didn’t feel it was the right diagnosis. The more I research and understand other people’s experiences I do accept that I do have seizures. I just hate that they are called pseudoseizures because then it sounds like they are fake when in all reality it’s absolutely terrifying

    • CSweet94

      771d

      Oh my gosh, YES!!!!

    • IsaHope

      772d

      I felt like I was faking it for the longest time. It took my neurologist telling me that this was something I had no control of and that something in my psychology causing them that I felt a little better about it. He also affirmed that they were "real" seizures, just not epileptic. It wasn't until my neurologist spoke with my parents that they truly believed they were real too.

      • katieliz

        756d

        @IsaHope the whole “not real seizures” is so hard for me it makes me feel like I’m faking it for attention

    • Sadistiel

      775d

      yes all the time. whenever i have one my parents just ask me what i did to cause it. as if we’re in control 😒 but we’re not, and it’s so frustrating!

    • Sadako

      776d

      Yeah I vomit and have had seizure activity presence on EEG's but I still get treated as if I'm to blame for everything.Yet I've been in a car accident and had a long pstd episode and be fine. The Er never asks about my mental state and I generally get ignored.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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