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46d
how do you manage the fear of relapse or progression, especially during times when you're feeling physically well?
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Leukemia
Acute lymphocytic leukemia (ALL)
Atony of bladder
Multiple Myeloma (MM)
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37d
@Qonal3rd 🙌
39d
I try to limit doomscrolling and look for cute pictures. It's easy to fall down the internet rabbit hole, reading every forum and article about relapse rates and horror stories. I try to limit that as much as possible. It's about finding a balance between being informed and overwhelming yourself.🫶
45d
It's normal to feel that fear, especially on good days when it seems like everything is going too well.
That fear is always in the back of my mind😶🌫️
I try to focus on things I can control and not the what ifs, like eating healthy, staying active, and keeping up with my follow-up appointments.
38d
@Qonal3rd @Qonal3rd Good reply! I've just learned to be happy and positive about being in remission. Even when the disease recurs, my treatments are not so bad. Things can always be worse. My wife died of endometrial cancer and it was horrible. I feel lucky that I have a cancer that is so treatable with new treatments becoming available all the time. Things could be so much worse.
@Qonal3rd @Qonal3rd so true
☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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One way to manage the fear of relapse, especially during days when you're feeling sick, is to take a break and do something enjoyable such as watching a movie, catching up with a friend, or spending time in a garden. It's also important not to beat yourself up if a relapse occurs, but rather continue forward with the progress you've made. Distraction can be helpful, such as going for a walk, calling a friend, or getting out of the house. Being part of supportive communities can also be beneficial.
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