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Chrispy

686d

Anyone with Factor V, is Ju Jitsu or Tai Kwon Do a realistic sport I/we can participate in or am I just daydreaming. Thanks!

Top reply
    • sharlon

      637d

      I have factor 5, my daughter takes Xarelto because she has Factor 5 as well. She had two pulmonary embolism go through her heart,and into her lungs. Why she is alive we don't know how,I'm am so grateful she is,however the doctor said usually people won't live through that. So I was tested,and the Factor 5 came from me. I have never had a blood clot so the doctors didn't give me blood thinners. The rule of thumb Is from what the doctors say is no blood clots or issues,they won't give blood thinners to you,even though you ha e Factor 5. I went to the doctor and he freaked because I had not been taking blood thinners all along. Does this sound right? I look at it as I don't want to wait until I have a clot before i deal with it. I'm 53 I smoke. I may not get a chance to deal with it and die. I'm taking Warrfarin. Not sure if it's the way it should be anyone know?

    • sharlon

      637d

      I have factor 5, my daughter takes Xarelto because she has Factor 5 as well. She had two pulmonary embolism go through her heart,and into her lungs. Why she is alive we don't know how,I'm am so grateful she is,however the doctor said usually people won't live through that. So I was tested,and the Factor 5 came from me. I have never had a blood clot so the doctors didn't give me blood thinners. The rule of thumb Is from what the doctors say is no blood clots or issues,they won't give blood thinners to you,even though you ha e Factor 5. I went to the doctor and he freaked because I had not been taking blood thinners all along. Does this sound right? I look at it as I don't want to wait until I have a clot before i deal with it. I'm 53 I smoke. I may not get a chance to deal with it and die. I'm taking Warrfarin. Not sure if it's the way it should be anyone know?

    • Gracie0697

      643d

      I lived a very normal life and still do and I wasn't diagnosed till last year.

    • Peng

      681d

      If you want to do it, then go ahead. Just be careful. You still have your life to live and can't let it control you. I tested positive for factor V 27 years ago. I do alot of things with my kids. Hiking, Zip Lining, Horseback riding.

      • Chrispy

        646d

        @Peng thank you! That’s very encouraging to hear. My son and I are going to get involved in some kind of martial arts

    • Itsjustfi

      686d

      I would talk to your hematologist….. if your INR is well adjusted maybe? I would just be prepared for a lot of down time to heal bruising.

      • Chrispy

        685d

        @Itsjustfi thanks! When I was on Coumadin, I was constantly stressed about my PT/INR. I take eliquis now which is night and day. The bruising was my concern, and for the most part, I’m still as active as I was before I was diagnosed. Thanks for the advice!

        • Itsjustfi

          685d

          @Chrispy I’m also on Eliquis now and am living a much more active lifestyle than the 6 years on Coumadin

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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