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Factor 5 Leiden and Other Disorders: Seeking Advice

snorlax

705d

Has any been diagnosed with factor 5 Leiden (both mutations) and something else? My hemotologist suggested that I see a geneticist because I may have other disorders. I think there might be something related to my veins being wonky.

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Primary hypercoagulable state

Arterial Embolism & Thrombosis

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    • alvio

      380d

      @Haleigh3 just make sure they look at blood thinners while you r pregnant..when I was looking at having another baby they were going to give me clexaine injections daily, which is quite scary..in the end we decided to get my tubes done, I'm happy with my one son, though it would of been nice to give him a sibling (we lost our first, still birth that's how we found out I was leiden)

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    • alvio

      380d

      Yip I have lupus antiphospholipid syndrome..get that checked. Though if u r on blood thinners, they can't completely diagnose..but worth a look

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    • Haleigh3

      556d

      I have Factor 5 Leiden mutation I don't have enough protein c to where makes my blood clot and I haven't had a cot since 2011 and that was when I was pregnant with my daughter it just sucks having to be super careful and I'm not saying any doctor they said the only time we need to is when I get pregnant again

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      • alvio

        380d

        @Haleigh3 just make sure they look at blood thinners while you r pregnant..when I was looking at having another baby they were going to give me clexaine injections daily, which is quite scary..in the end we decided to get my tubes done, I'm happy with my one son, though it would of been nice to give him a sibling (we lost our first, still birth that's how we found out I was leiden)

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    • Peng

      701d

      Yes, I have both. Also DVT We're you tested for that?

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      • snorlax

        701d

        @Peng no I'm talking about a blood disorder not a blood clot

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    • Lynda76

      704d

      I have factor 5 where I clot too fast n much at least that what I was told when I got a dvt after my last child was born blood draws are a pain my veins collapse. I also have heart disease congested heart failure copd asthma diabetes pcos ...

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    • Freya83

      705d

      I have factor V and Thalassemia. Having them both is the only thing that saved my life when I had bilateral P.E.’s. I came into the ER with 30% oxygen levels I could barely breathe it was definitely scary

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    • Mollyfreerny

      705d

      I have two blood clotting disorders including factor v! I also have tiny veins which is an issue when it comes to blood draws.

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      • snorlax

        705d

        @Mollyfreerny I'll actually message you 🤗

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      • snorlax

        705d

        @Mollyfreerny what were the diagnosis if I may ask, It will help me pinpoint specificly. I have very tiny and shallow veins.

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☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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