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432d

How do you explain CFS to family

Top reply
    • Brainiac5

      416d

      A lot of what it was for me was explaining the difference between being tired and being exhausted (fatigued). As well as just cause I want to sleep doesn’t mean I can. And that I don’t sleep till mid afternoon for the sake of it, it’s cause I can’t wake up earlier.

    • Brainiac5

      416d

      A lot of what it was for me was explaining the difference between being tired and being exhausted (fatigued). As well as just cause I want to sleep doesn’t mean I can. And that I don’t sleep till mid afternoon for the sake of it, it’s cause I can’t wake up earlier.

    • Belle0fTheBall

      427d

      I say, "imagine you have the flu, and then you go for a run, and are asked to do some complicated maths equations. Imagine how exhausted you would feel. This is how I feel when I wake up, then I have to get up and function throughout the day."

    • CitrusGarden

      428d

      I say that my cells/organs use more energy than they produce (which is a very simplified version of a legitimate theory, so it doesn’t feel like lying).

    • Wednesday_7

      428d

      Usually I like to only call it ME around family who are invalidating. It’s a nueroimmunilogical disorder that’s not well understood. It’s characterized by pain, debilitating fatigue, and post-exertional maliese. Also emphasizing that it’s not just normal tiredness because it’s to a clinically significant and disabling degree. If I’m explaining it to children or family who are understanding I just say it’s extreme fatigue that keeps me from functioning normally, getting super worn out from excercising (to an abnormal degree), and chronic muscle pain.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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