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Elizabeth410234

871d

Hi! So pretty much since I was diagnosed with Crohn’s, my doctor has pushed for me to take mercaptopurine (6MP). I have been taking it for a few years and having weekly , monthly, and then more sporadic blood work to monitor the levels. Recently, my liver enzymes came back as elevated so she wants me to stop taking it. I’m starting to have some symptom flare up. And Now I am only getting Entyvio infusions every 8 weeks. Has anyone else experienced something similar? I’m just feeling like no matter what I do nothing changes. Even when I was on 6MP, budesonide(Entocort), and Entyvio, my crohn’s still stayed the same.

Top reply
    • seahorsesforever

      860d

      Yes I was on 6mp for years, found out I was allergic to humira & remicade which both gave me medically induced lupus, entyvio gave me bad eye pain so I chose to add that to my allergy list. I am currently doing well on Stelara since 2019, have had Crohns for 18 years and took 6mp a lot of that time

    • seahorsesforever

      860d

      Yes I was on 6mp for years, found out I was allergic to humira & remicade which both gave me medically induced lupus, entyvio gave me bad eye pain so I chose to add that to my allergy list. I am currently doing well on Stelara since 2019, have had Crohns for 18 years and took 6mp a lot of that time

    • Elizabeth410234

      866d

      Thank you both so much for sharing your stories and thoughts with me. I appreciate it. I’ve never had anyone else to talk to about Crohn’s treatment plans :) thanks again for the advice!

    • s.jco

      869d

      I just wanna second the comment about Remicade. From a different perspective, I’m recently diagnosed and have only been on Remicade for 7ish months (only 5 doses I think) and I’ve had great success with it. My relapse was super severe and the Remicade really helped pull me out of it and start gaining back weight so I have enough strength to deal with what’s to come. As Leia said, be open with your doctor and take charge of your health and the conversation. And second opinions never hurt. Much love 💕

    • LeiaRose

      870d

      Hello! I take Remicade infusions myself, and I've had them ever since I was diagnosed (when I was 11, about 9ish years ago). Remicade has been amazing for me and as long as I'm consistent with treatments it keeps me mostly in remission. I would definitely day that if you've had no improvement that you should ask about another treatment- perhaps Remicade, although your doctor could have other recommendations too. If the doctor isn't supportive of you wanting to switch medications, a new doctor with a different perspective could be helpful too. Best of luck!💕💕

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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