See Alike in...

Alike App

Browser

Aceyp

829d

Hey I was just wondering if anyone else here experienced CHS?

Top reply
    • Yrrebwarts

      762d

      It’s the first phase of the four phases of CVS, the final being the recovery phase. I refer to it as “the calm before the storm”, nausea and severe migraines are common indicators for me that I’m about to have an episode. The prodromal phase is your only chance to stop an episode before it starts. It’s not a cure all but it can reduce your number of ER visits per year. If your doctor hasn’t prescribed you an anti-nausea medication ask them about getting one, I use Zofran (Ondansetron) but ask your doctor what’s right for you. Keep a journal of all your symptoms any time you realize an episode is coming, with time you’ll be able to recognize your bodies prodromal phase. If you have had Zofran pills prescribed and they don’t work ask for the ODT (dissolvable) tablets. They get into your system much faster than a pill. The pills never work for me but the ODT does.

    • Yrrebwarts

      762d

      It’s the first phase of the four phases of CVS, the final being the recovery phase. I refer to it as “the calm before the storm”, nausea and severe migraines are common indicators for me that I’m about to have an episode. The prodromal phase is your only chance to stop an episode before it starts. It’s not a cure all but it can reduce your number of ER visits per year. If your doctor hasn’t prescribed you an anti-nausea medication ask them about getting one, I use Zofran (Ondansetron) but ask your doctor what’s right for you. Keep a journal of all your symptoms any time you realize an episode is coming, with time you’ll be able to recognize your bodies prodromal phase. If you have had Zofran pills prescribed and they don’t work ask for the ODT (dissolvable) tablets. They get into your system much faster than a pill. The pills never work for me but the ODT does.

    • Fibrofoggirl

      762d

      I can’t even talk when I have an episode

    • Fibrofoggirl

      762d

      What is prodromal care?

    • Fibrofoggirl

      762d

      Everytime I go to the hospital for cvs episodes they think I’m seeking drugs it’s so awful 😭

      • Yrrebwarts

        762d

        @Fibrofoggirl omg I feel you. I’ve been accused of all kinds of things over the years. Honestly I avoid ER’s like the plague now. My local ER doesn’t believe CVS is a real disease. As a result I’ve gotten much more into prodromal care. I’ve wound up having fewer episodes as a result because I can stop them before they start.

    • Yrrebwarts

      763d

      I have CVS and use marijuana as a way to manage pain. When I go to ER’s for episodes that cannot be controlled at home they always tell me that I have CHS. This is NOT true. While having CVS and suffering from CHS at the same time is possible, it’s rarely the case. I have told doctors at ER’s that I have CVS and they’ll try and tell me it’s a symptom not a disease. If they do this, it’s probably because they’ve never heard of CVS or believe that it’s real. If a doctor at an ER tried to re-diagnose your CVS ask for a new doctor or a patient advocate.

    • Fibrofoggirl

      814d

      For me it started a year ago every month when I get my period. I am on a new medicine called qulipta, so hopefully it works and it won’t happen again.

    • SkyScout

      815d

      Many people who think they have CVS actually have CHS. There are ways to tell them apart, a good neuro can help. Also, people who start experiencing symptoms as children usually don’t have CHS, lol.

    • Fibrofoggirl

      825d

      What is that?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion