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keallei

809d

One of my main conditions is not listed here at all and that’s the one I was hoping to connect over on this app. I have Exercise induced urticaria (hives) and anaphylaxis (white/black outs after airway & lung itching/on fire/swelling) and Vocal Cord Dysfunction. It’s abbreviated as just EIA I think because not all people get the hives part? Not sure. I have been taking monthly Xolair (omalizumab ) injections for a year which has made the hives completely go away. I’m in a lapse of my insurance and after a week or so missing my injections I could feel my lungs begin to inflame from any exercise. My diagnosis used to include Exercise induced asthma but I can exhale perfectly according to my textbook perfect spirometry readings. The breathing difficulty during exercise is Vocal Cord Dysfunction. My EIA is not food induced. I do not know anyone else who has this condition. I also am allergic to pollen, grass, trees, ragweed, mold, cats (only recently), dust mites, and, of course exercise. The allergies are made worse during physical activity. Anyway, if anyone has this it would be nice to connect. Hopefully the app adds the condition soon.

Top reply
    • MrsFunSized93

      804d

      I have auto immune urticaria, getting hot and sweaty make mine worse. I'm also allergic to everything u listed and then some! I would love to chat anytime your on. I know it's not the same but I just started taking xolair shots for mine too.

    • MrsFunSized93

      804d

      I have auto immune urticaria, getting hot and sweaty make mine worse. I'm also allergic to everything u listed and then some! I would love to chat anytime your on. I know it's not the same but I just started taking xolair shots for mine too.

      • keallei

        804d

        @MrsFunSized93 aaaagh! So exciting to find the most similar person to me in this medical regard. Hot and sweaty and breathing hard make my hives show up, too! And like warm air blowing from car vents makes me nauseous. I’m SO thankful I don’t have food allergies (other than jalapeños and the like making me a little itchy but I think it’s the association with heat that might psychosomatically make me think it’s hot so I habitually start scratching in anticipation of hives).

        • MrsFunSized93

          803d

          @keallei omg yes! I'm going to send u a pm

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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