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keallei

2y ago

Looking for others with Exercise Induced Urticaria and Anaphylaxis

One of my main conditions is not listed here at all and that’s the one I was hoping to connect over on this app. I have Exercise induced urticaria (hives) and anaphylaxis (white/black outs after airway & lung itching/on fire/swelling) and Vocal Cord Dysfunction. It’s abbreviated as just EIA I think because not all people get the hives part? Not sure. I have been taking monthly Xolair (omalizumab ) injections for a year which has made the hives completely go away. I’m in a lapse of my insurance and after a week or so missing my injections I could feel my lungs begin to inflame from any exercise. My diagnosis used to include Exercise induced asthma but I can exhale perfectly according to my textbook perfect spirometry readings. The breathing difficulty during exercise is Vocal Cord Dysfunction. My EIA is not food induced. I do not know anyone else who has this condition. I also am allergic to pollen, grass, trees, ragweed, mold, cats (only recently), dust mites, and, of course exercise. The allergies are made worse during physical activity. Anyway, if anyone has this it would be nice to connect. Hopefully the app adds the condition soon.

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MrsFunSized93

2y ago

I have auto immune urticaria, getting hot and sweaty make mine worse. I'm also allergic to everything u listed and then some! I would love to chat anytime your on. I know it's not the same but I just started taking xolair shots for mine too.
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keallei

2y ago

aaaagh! So exciting to find the most similar person to me in this medical regard. Hot and sweaty and breathing hard make my hives show up, too! And like warm air blowing from car vents makes me nauseous. I’m SO thankful I don’t have food allergies (other than jalapeños and the like making me a little itchy but I think it’s the association with heat that might psychosomatically make me think it’s hot so I habitually start scratching in anticipation of hives).

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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