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ButterflyLuni

2y ago

Exercising with EDS and Fibromyalgia: Tips and Advice

how to exercise without causing issues with EDS? I also have fibromyalgia so it's important to stay active but I keep flaring pain and fatigue or I'll dislocate something

Your answer

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dollipop

2y ago

Anything in water is the easiest and safest. This is an odd one I don't see get mentioned often but weight pull. Yes it requires equipment but some specialty gyms have set ups for that. It can also be done diy fairly easily. It is extremely safe, low impact, and low joint stress unless you get into strongman weight categories. It is the reason weight pull is a popular sport for dogs that have health conditions or are old. Weight lifting is also very safe when taken slow. Personally it's been one of the most effective ways for me to improve joint stability. And just to get my body moving on bad pain days, tai chi and Chigong are my go to. They provide stretches that aren't as intense as something like yoga but it's still a meditative practice.
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AudreyHepburn

2y ago

My physical therapist recommends doing everything in the pool. Even walking! Just floating in the water helps with my pain.
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Gumbysam

2y ago

Check out Jeanie di bon on YouTube - she is a movement therapist who has EDS herself and she shows gentle low impact exercises you can do - she also has an app with more stuff if you end up enjoying her :)
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heyvp

2y ago

Pilates (especially reformer) has done wonders for improving my strength and endurance to tolerate other low impact exercise. I also walk frequently.
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AudreyHepburn

2y ago

My physical therapist also said no to yoga but suggested standing Pilates. She suggested I do all of my walking in a pool and gave me other pool exercises to do, also. No weights, though!
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cozybunbun

2y ago

I enjoy body weight exercises like yoga and pilates, weight lifting, and forms of acro like pole and lyra. With yoga I focus more on poses that build core strength and stability, or that help some of the areas I normally have a lot of pain in. Weight lifting is one of my favs but I haven't been able to pretty much since the pandemic (gyms in my area still aren't 24/7 and when I tried to go I just got too anxious). Pole is my all time fav, but it's tricky with hypermobility. I have a pile at home now but because I can't really go to in-person classes my progress of re-learning has been pretty slow.
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MaggieQuinn

2y ago

Aquatic PT was SO good for me, after strengthening my muscles and tendons I️ was able to use an elliptical! (Last time I️ tried I️ popped my shoulder out of socket)
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RenaRose

2y ago

I enjoy taking walks. It can be as long or short as you'd like! 😊
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Ren.exe

2y ago

I have heard people talk about the Muldowney Protocol. I had a bad experience with PT where they pushed too far too soon. I found a PT who understands EDS except they don't take my insurance and I'm gonna have to apply for financial assistance because the sessions are super expensive. But finding a PT who understands EDS is a good idea I think.
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Radios

2y ago

I try to do yoga. It's easy for beginners and can be changed for more advanced moves. I also find it to help with lost flexibility, any instability, and tension.
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Kae92

2y ago

I've been told that doing yoga is a no-no with EDS. It makes it super easy to sublex joints while doing it. But my joints are constantly sublexing so maybe it was directed specifically at me and my EDS because every time I've tried yoga something dislocates
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EDSandco

2y ago

Going to Physical Therapy. A Physical therapist will be able to help you develop routines that don't hurt you and can help fix issues that would cause other injuries.
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Future_Dr._Zebra

2y ago

Hiking is my absolute favorite form of exercise 🌱
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ButterflyLuni

2y ago

I used to hike all the time! We have some beautiful trails here that were amazing. Sadly I have to walk with a cane now so hiking isn't easy anymore
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Nichole78

2y ago

Swimming is low impact

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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