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ButterflyLuni

724d

how to exercise without causing issues with EDS? I also have fibromyalgia so it's important to stay active but I keep flaring pain and fatigue or I'll dislocate something

Top reply
    • dollipop

      716d

      Anything in water is the easiest and safest. This is an odd one I don't see get mentioned often but weight pull. Yes it requires equipment but some specialty gyms have set ups for that. It can also be done diy fairly easily. It is extremely safe, low impact, and low joint stress unless you get into strongman weight categories. It is the reason weight pull is a popular sport for dogs that have health conditions or are old. Weight lifting is also very safe when taken slow. Personally it's been one of the most effective ways for me to improve joint stability. And just to get my body moving on bad pain days, tai chi and Chigong are my go to. They provide stretches that aren't as intense as something like yoga but it's still a meditative practice.

    • dollipop

      716d

      Anything in water is the easiest and safest. This is an odd one I don't see get mentioned often but weight pull. Yes it requires equipment but some specialty gyms have set ups for that. It can also be done diy fairly easily. It is extremely safe, low impact, and low joint stress unless you get into strongman weight categories. It is the reason weight pull is a popular sport for dogs that have health conditions or are old. Weight lifting is also very safe when taken slow. Personally it's been one of the most effective ways for me to improve joint stability. And just to get my body moving on bad pain days, tai chi and Chigong are my go to. They provide stretches that aren't as intense as something like yoga but it's still a meditative practice.

    • AudreyHepburn

      716d

      My physical therapist recommends doing everything in the pool. Even walking! Just floating in the water helps with my pain.

    • Gumbysam

      716d

      Check out Jeanie di bon on YouTube - she is a movement therapist who has EDS herself and she shows gentle low impact exercises you can do - she also has an app with more stuff if you end up enjoying her :)

    • heyvp

      717d

      Pilates (especially reformer) has done wonders for improving my strength and endurance to tolerate other low impact exercise. I also walk frequently.

    • AudreyHepburn

      719d

      My physical therapist also said no to yoga but suggested standing Pilates. She suggested I do all of my walking in a pool and gave me other pool exercises to do, also. No weights, though!

    • cozybunbun

      722d

      I enjoy body weight exercises like yoga and pilates, weight lifting, and forms of acro like pole and lyra. With yoga I focus more on poses that build core strength and stability, or that help some of the areas I normally have a lot of pain in. Weight lifting is one of my favs but I haven't been able to pretty much since the pandemic (gyms in my area still aren't 24/7 and when I tried to go I just got too anxious). Pole is my all time fav, but it's tricky with hypermobility. I have a pile at home now but because I can't really go to in-person classes my progress of re-learning has been pretty slow.

    • MaggieQuinn

      722d

      Aquatic PT was SO good for me, after strengthening my muscles and tendons I️ was able to use an elliptical! (Last time I️ tried I️ popped my shoulder out of socket)

    • RenaRose

      722d

      I enjoy taking walks. It can be as long or short as you'd like! 😊

    • Ren.exe

      724d

      I have heard people talk about the Muldowney Protocol. I had a bad experience with PT where they pushed too far too soon. I found a PT who understands EDS except they don't take my insurance and I'm gonna have to apply for financial assistance because the sessions are super expensive. But finding a PT who understands EDS is a good idea I think.

    • Radios

      724d

      I try to do yoga. It's easy for beginners and can be changed for more advanced moves. I also find it to help with lost flexibility, any instability, and tension.

      • Kae92

        724d

        @Radios I've been told that doing yoga is a no-no with EDS. It makes it super easy to sublex joints while doing it. But my joints are constantly sublexing so maybe it was directed specifically at me and my EDS because every time I've tried yoga something dislocates

        • Bijoux_bean22

          723d

          @Kae92 I have also been asked not to do yoga as well as jumping, running and jogging as it’s not safe. I personally can’t swim either because of my POTS. My exercise go to s are dancing (safely ofc, my friends stop me if they think it might sublux something) hiking in my chair, tree climbing and four square (just found out last night I can do adaptive four square)

        • Radios

          724d

          @Kae92 I've never found anything to happen with me. I tend to stick to easy things that a child could do on their own and pay attention to anything that might dislocated or sublux. And whenever I do it regularly I find my knees and hips become more stable even if slightly. It might just be me though. I'm just going off of my own experience since I have no doctor to direct me at the moment.

    • EDSandco

      724d

      Going to Physical Therapy. A Physical therapist will be able to help you develop routines that don't hurt you and can help fix issues that would cause other injuries.

    • Future_Dr._Zebra

      724d

      Hiking is my absolute favorite form of exercise 🌱

      • ButterflyLuni

        724d

        @Future_Dr._Zebra I used to hike all the time! We have some beautiful trails here that were amazing. Sadly I have to walk with a cane now so hiking isn't easy anymore

    • Nichole78

      724d

      Swimming is low impact

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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