yumiko

121d

I've always found it difficult to find someone to talk to about my epilepsy because I dont have tonic clonic seizures, I dont know anyone else with photosensitive epilepsy with absent and myoclonic seizures.

advertisement

Top reply
    • Scarlett.night

      59d

      @EliteLexy medication and stress control

    • couragousepilepic21

      121d

      I have non of that but I've found support groups on Facebook

    • Aikio

      121d

      It's so. Hard

      • yumiko

        117d

        @Aikio are you experiencing something similar

    • Quinniffer

      120d

      I have photosensitive absent seizures. It can be really hard. I've never met another person with them and most people don't believe me

      • yumiko

        117d

        @Quinniffer omg really, most people don't believe me either. what do your seizures look like?

    • Blue001

      117d

      I used to have absent seizures. My neurologist thought it was photosensitive. I have really aware when there is a flashing light. Whether it’s just flickering slightly or it’s intense flashing. I can’t help but be fully aware and anxious about it. I have become better with it as time has progressed. I hope you’re okay and just so you know you are not alone. If you ever want to text me, I’m here. I’ve had people use my epilepsy against me to limit me and that should never happen. We are all the same even if we can have our slight differences xx ☺️

    • Scarlett.night

      117d

      I used to have PNES

      • EliteLexy

        112d

        @Scarlett.night if you don't mind me asking, are no longer having them? And what helped you, if so?

        • Scarlett.night

          59d

          @EliteLexy meds I think

        • Scarlett.night

          59d

          @EliteLexy medication and stress control

    • Smash

      111d

      I haven’t got an official diagnosis yet but I’m pretty sure I’m having myoclonic seizures. Just waiting to get into neuro lol

    • Ash.G

      101d

      I am not officially diagnosed with seizures yet. But I have reason to speculate that I ether have migraines or some sort of non tonic clonic seizures. Unfortunately I have a hard time with remembering how I should explain them to a doctor. I also done playing my symptoms because I don't want people to think that I'm a hypochondriac or looking for a med to be high on. Also migraines running my family but most people that have them in my family don't get them as often and it lasts longer than mine and have different symptoms.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion