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Kimily

817d

what about epilepsy makes you most afraid?

Top reply
    • strugglebus

      365d

      If it'll go away one day. I feel like I have so much hope it will develop away, but it's also my biggest fear. That I'm stuck with epilepsy.

    • strugglebus

      365d

      If it'll go away one day. I feel like I have so much hope it will develop away, but it's also my biggest fear. That I'm stuck with epilepsy.

    • yumiko

      366d

      if its real or not, that might sound dumb but I've been lead to believe my whole life that I've been suffering with epilepsy but now the doctors are so sure if I still have epilepsy

    • LaurenK

      609d

      Not being able to drive or having one at work

    • JessieBelle

      731d

      The fact that I don't realize it happened until afterwards and my family has to wat h it happen. Also the possibility of it happening in public and the possible injuries. 😥

    • catrina

      778d

      I've had it for so long that I'm used to it

    • Momma_84

      802d

      Does anyone have eye seizures? Mine been hoping on a few weeks now. I have regular seizures but, now I started having seizures in my left eye.

      • moonboots87

        683d

        @Momma_84 does this mean you see things messed up or your eyes twitch? I ask because since I started having seizures my eyes have been acting up so bad. If I try to read everything jumps, sometimes with color.

    • wisdom

      802d

      I used to fear it. But...I've been diagnosed so long, it's hard to explain. It's no longer a fear. I'm "used" to them. Ah sorry if this sounds selfish. I've been seizure free so long. That I guess I'm freaked out about having one. That took a turn huh? Guess I'm not used to it

    • Mady

      802d

      Knowing I could drop at any give moment in the day and have one.

    • Momma_84

      814d

      I'm so sorry you gave to go through all of that!!!

    • alleysmith94

      815d

      Everything about it

    • Walking_Library

      817d

      The rare conscious seizures. When I’m trapped in my mind with no control over my body. I’d rather fall unconscious and flail. When I’m still mentally there, time is too slow and the twitching is painful. At least when I’m unconscious, I don’t feel the pain. It’s torture to be conscious while seizing.

      • Loren986

        548d

        @Walking_Library I feel the same.y co-workers and friends think that the unconscious ones are worse and I don't know how to explain to them that conscious ones are worse. I hate trying to talk after a conscious seizure but not be able to say anything

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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