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Greenfiretrucks

Updated 11mo ago

Should I Consider Epilepsy a Disability?

Hellooo! I just have a question for people with epilepsy, I’ve had it for awhile now and I’ve never named it as a disability but now I’m wondering if I should because it effects everything in my life , what do you think?

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AI-generated answer based on the text from previous posts and comments

One user mentioned that epilepsy has affected their everyday life, causing stress and memory problems. Another user suggested not letting epilepsy stop you from living your life but acknowledged that ...See More

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rip_ash

1y

I call mine a disability because I have school accommodations and my brain processes things differently than a neurotypical person :)
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Greenfiretrucks

1y

yesss!
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Sweetpea22

1y

Im in the same boat as you... I kinda almost feel like if I do. I feel like I fail as a person. But also till recently the doctors didn't know if I actually had it. But I had testing done. And I infact do have epilepsy. I think I kinda understand what your meaning. If you want you can message me
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Greenfiretrucks

1y

yess! I feel like calling it a disability just means I failed, like I can’t do anything but I’m so much more.
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JessyP

1y

It is a disability
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faerywyrm

1y

Epilepsy is one of the harder conditions for epileptics themselves to call a disability. I know I still struggle with it. Part of the problem is that it can be controlled in most cases to one degree or another. However, Epilepsy is a ticking time bomb. Anything can set off a seizure, and there are often no warnings. Even when seizures are under control with proper treatment, they can happen.
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Greenfiretrucks

1y

I totally get that, it’s so hard after a epilepsy diagnosis to even accept the fact that you are stuck with it. And not to be morbid but even die.
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Sweetpea22

1y

it even hard to get a proper diagnosis. My journey started in 2019. I was told i had seizures. Then finally I got seizures free towards middle of 2020. Then all the sudden last year a week before my birthday I had one. Bjt the people I was around didn't know what it was. So on my 21st birthday I had one with my family and they new what was happening. And ive been fighting with doctors till October when I was told they are gonna send me to a specialist. So I waited. When I got there he didn't even think I had them. But he sent me for an EMU test and it was a week long EEG where they took my seizure meds away. Sure enough I have epilepsy. So now we are trying new medication. But I was getting so down. I thought it was all in my head or people was lying to me.
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Greenfiretrucks

1y

thank you for sharing!! I totally agree it’s so hard to believe people after a epilepsy diagnosis! Keep fighting!! 💜
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faerywyrm

1y

I am glad that you finally got some help... sorry it took so long. For me, it was a very long seizure that sent me to the er, and they registered the seizure and post icky state. There was no arguing.
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hail_czer

1y

I have always struggled with this. I never wanted to consider Epilepsy as a disability, but at the same time it is so much harder for me to get places and do certain things than the average person because of the Epilepsy.
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Greenfiretrucks

1y

yess! I feel like if I consider epilepsy a disability I’m attempting to get attention but at the same time it needs to be addressed as one because of those extra hours of not being able to get/ do other things able bodied people can!
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Finking

1y

I do! Side affects from the medications really hit me in ways I can't explain, along with not being able to do things non-epileptics can
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Greenfiretrucks

1y

all that is so true! The medications have side affects that I am forced to live with to not have seizures, I feel like an attention seeker calling it a disability or like my life is over idk what to do at this point?
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Snowflake_trish

1y

It is a disability even classified as one by the government if you're in America because of how bad it can affect your life
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Greenfiretrucks

1y

yes! It effects my life sooo much, when I call it a disability or the government does it makes me seem like less of a human.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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