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Greenfiretrucks

268d

Hellooo! I just have a question for people with epilepsy, I’ve had it for awhile now and I’ve never named it as a disability but now I’m wondering if I should because it effects everything in my life , what do you think?

Top reply
    • Greenfiretrucks

      238d

      @Snowflake_trish yes! It effects my life sooo much, when I call it a disability or the government does it makes me seem like less of a human.

    • Snowflake_trish

      247d

      It is a disability even classified as one by the government if you're in America because of how bad it can affect your life

      • Greenfiretrucks

        238d

        @Snowflake_trish yes! It effects my life sooo much, when I call it a disability or the government does it makes me seem like less of a human.

    • Finking

      261d

      I do! Side affects from the medications really hit me in ways I can't explain, along with not being able to do things non-epileptics can

      • Greenfiretrucks

        261d

        @Finking all that is so true! The medications have side affects that I am forced to live with to not have seizures, I feel like an attention seeker calling it a disability or like my life is over idk what to do at this point?

        • faerywyrm

          261d

          @Greenfiretrucks maybe the best option is to accept epilepsy as a part of ourselves and try to do what we can despite the side effects of the meds. Most people won't understand that epilepsy is a disability, as it has been thought of as a small inconvenience for a small section of society.

    • hail_czer

      263d

      I have always struggled with this. I never wanted to consider Epilepsy as a disability, but at the same time it is so much harder for me to get places and do certain things than the average person because of the Epilepsy.

      • Greenfiretrucks

        262d

        @hail_czer yess! I feel like if I consider epilepsy a disability I’m attempting to get attention but at the same time it needs to be addressed as one because of those extra hours of not being able to get/ do other things able bodied people can!

    • Sweetpea22

      268d

      it even hard to get a proper diagnosis. My journey started in 2019. I was told i had seizures. Then finally I got seizures free towards middle of 2020. Then all the sudden last year a week before my birthday I had one. Bjt the people I was around didn't know what it was. So on my 21st birthday I had one with my family and they new what was happening. And ive been fighting with doctors till October when I was told they are gonna send me to a specialist. So I waited. When I got there he didn't even think I had them. But he sent me for an EMU test and it was a week long EEG where they took my seizure meds away. Sure enough I have epilepsy. So now we are trying new medication. But I was getting so down. I thought it was all in my head or people was lying to me.

      • faerywyrm

        267d

        @Sweetpea22 I am glad that you finally got some help... sorry it took so long. For me, it was a very long seizure that sent me to the er, and they registered the seizure and post icky state. There was no arguing.

        • Greenfiretrucks

          267d

          @faerywyrm well that’s definitely good!

      • Greenfiretrucks

        267d

        @Sweetpea22 thank you for sharing!! I totally agree it’s so hard to believe people after a epilepsy diagnosis! Keep fighting!! 💜

    • faerywyrm

      268d

      Epilepsy is one of the harder conditions for epileptics themselves to call a disability. I know I still struggle with it. Part of the problem is that it can be controlled in most cases to one degree or another. However, Epilepsy is a ticking time bomb. Anything can set off a seizure, and there are often no warnings. Even when seizures are under control with proper treatment, they can happen.

      • Greenfiretrucks

        268d

        @faerywyrm I totally get that, it’s so hard after a epilepsy diagnosis to even accept the fact that you are stuck with it. And not to be morbid but even die.

        • faerywyrm

          268d

          @Greenfiretrucks facing the possibility of death with each seizure is tough, but beating it every time is a huge triumph!

    • JessyP

      268d

      It is a disability

    • Sweetpea22

      268d

      Im in the same boat as you... I kinda almost feel like if I do. I feel like I fail as a person. But also till recently the doctors didn't know if I actually had it. But I had testing done. And I infact do have epilepsy. I think I kinda understand what your meaning. If you want you can message me

      • Greenfiretrucks

        268d

        @Sweetpea22 yess! I feel like calling it a disability just means I failed, like I can’t do anything but I’m so much more.

        • Sweetpea22

          268d

          @Greenfiretrucks im trying to learn that everyday. It is a disability and yeah it effects me daily and people around me. But im trying to learn and accept that I am so much more!

    • rip_ash

      268d

      I call mine a disability because I have school accommodations and my brain processes things differently than a neurotypical person :)

      • Greenfiretrucks

        268d

        @rip_ash yesss!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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One user mentioned that epilepsy has affected their everyday life, causing stress and memory problems. Another user suggested not letting epilepsy stop you from living your life but acknowledged that it can be emotionally hard. It's important to consider how epilepsy impacts your life and make decisions based on your personal experience and needs.

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