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JuliusSeizure

617d

Just checking out the app…looks pretty interesting. Apparently there are 8 people with epilepsy with whom it matched me. What kind of seizures do y’all have?

Top reply
    • BrandonSay

      615d

      Partial complex onset epileptic seizures

    • Hivemind

      615d

      I suffer from I think absence seizures and atonic seizures. Atonics don't occur often for me, but they're definitely concerning.

      • BrandonSay

        615d

        @Hivemind my seizures seem to scare everyone around me a lot more because I have them in clusters and last time I stopped I didn't wake up and I wasn't breathing so I'm really trying to watch for what exactly could be big triggers for me

    • BrandonSay

      615d

      Partial complex onset epileptic seizures

    • Notyarbllewe

      617d

      I meant that I have one of those two minor seizures every night or so.

    • Notyarbllewe

      617d

      I used to have what I called "dream seizures" where I went nearly unconscious but then my body did whatever it wanted (I called them dream because I remember faint parts of it, and I actually thought the first was a dream). What's weird was that it was still smart, as I played a game during one even better than prior. A round of Dead by Daylight, if you've heard of it. Now I have two minor seizures every night or so: 1. I lose the ability to understand anything, feeling like something for half a minute is screaming in my head (this sometimes happens in pulses throughout a part of a day); and 2. All of a sudden I started thinking differently, generally a negative view of something I just heard, then go back to reality, generally tired. Sorry this is so long.... 🤣

      • JuliusSeizure

        615d

        @Notyarbllewe That’s interesting, I’ve never heard of someone dreaming during a seizure.

        • Notyarbllewe

          615d

          @JuliusSeizure Well, I don't actually HAVE dreams during them, they just feel like it because I partially go back to consciousness during the seizure, but then it slips back out I think, only letting myself remember glimpses. The complexity of the entire seizure confuses me. 🤣

    • Will22

      617d

      Im a brain tumor patient, but I started experiencing seizures my 3rd year after. They are either psudeo seizures or epilepsy

      • JuliusSeizure

        617d

        @Will22 Never mind, I just looked up pseudoseizures. Looks like it’s just another word for a nonepileptic seizure.

      • JuliusSeizure

        617d

        @Will22 I’ve never heard of psudeo seizures. Is that just a seizure caused by a tumor? Do you know if it was the tumor or the surgery causing the seizures? It seems odd that it took a whole three years.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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