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Aikio

381d

How do you start take care of epilepsy on your own anyone with wise words of advice

Top reply
    • Ruthanna

      284d

      I think there's loads of good advice here but never think you NEED to look after yourself alone, I hope you have someone you can call or see when you need some support. Good luck!

    • Ruthanna

      284d

      I think there's loads of good advice here but never think you NEED to look after yourself alone, I hope you have someone you can call or see when you need some support. Good luck!

    • queenshaneek

      360d

      I also stay away from certain smells like lavender.

      • Aikio

        357d

        @queenshaneek thanks for letting me know

    • ZedLamb

      369d

      Get lots of sleep, try to keep yourself out of high stress situations and never skip taking your medication

    • Bex10

      377d

      My biggest trigger is not enough sleep or getting to stressed out.. so I learnt to put myself first at points of the day especially at night..

    • Taylor128

      380d

      Do you mean throughout every day life? •Figure out your triggers (if you can ) and work around those. For me- my bighest triggers are lack of sleep and stress so i def. Make sure i get enough sleep and do my best to calm down when im getting to stressed. •I know short term memory loss can be a huge deal while on AED medicine. To help deal with that, you could journal and set an alarm for sometime in the morning & quickly read through that. •Set reminders all throughout the day, for meds or anything else. Try to know your limit for your body-the things you can do without pushing it to far. •reach out and connect with other epileptics when you can , even if it's just online.

      • Aikio

        380d

        @Taylor128 oh never thought of this

    • Tii

      380d

      Know it's ok to be nervous. If you want to get a shower chair, get a shower chair. Live your life but make sure you have comfort 💕

    • Viynyl

      380d

      For me, its making sure I have reminders on my phone and calender for my medication and doctors visits, then I highly recomend getting to know your own body, especially through seizure auras so you know what will make you the least uncomfortable during the seizure, I personality also have a certain plush I hold/squeeze for comfort when no ones around to hold their hand, I also like to log every seizure I have abd a ballpark of the time and date for me to bring to my doctor!

      • Tii

        380d

        @Viynyl perfect ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Some advice for taking care of epilepsy on your own includes giving yourself plenty of time to wake up in the mornings, getting enough sleep at night, managing stress levels through activities like walking or crafting, taking medication as prescribed, and practicing self-care regularly. It's also important to maintain open communication with your neurologist and be aware of potential triggers that can lower seizure thresholds, such as lack of sleep and stress.

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