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Pero

1y ago

Looking for advice on epilepsy

Do anyone of you have epilepsy

Your answer

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Aikio

1y ago

Yep
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Charley93

1y ago

Yes I do
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Ash.G

1y ago

I am photosensitive and sensitive to pretty much every sense except for touch for at least migraines. I never really got tested so I'm not sure if it's migraines or something else but migraines run in my family. Then again my migraines don't seem like how the rest of my family experiences them. I get them more often than everyone else does and for a shorter amount of time. It also makes me feel like I'm going to pass out or actually pass out.
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faerywyrm

1y ago

I am an epileptic. I have mostly partial complex seizures, but occasionally focal ones. I was told that one in every 24 people are actually epileptic, whether they ever get diagnosed or not.
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Ecxlipsegal

1y ago

i do. not sure what kind i have because i've had about every seizure growing up
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MonarchL

1y ago

I have tonic-clonic seizures and absence seizures
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MonarchL

1y ago

I do
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SizzleNickel

1y ago

I do
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Justme22

1y ago

I'm generalized, so some of all since birth.
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BrandonSay

1y ago

I have had seizures that have knocked out several of my teeth and I can't afford to get it fixed, it's honestly really embarrassing
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TheOriginalBeans

1y ago

I just got diagnosed yesterday, I have grand mal seizures.
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Rene1027

1y ago

I do. I have tonic clonic seizures and myoclonic seizures. Last one was last Friday
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Rene1027

1y ago

I said that and then had one like 20 minutes later.
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klutz03

1y ago

Grand Mal seizures....so much pain! In November I had a seizure that broke my nose, gave me a concussion, and made me lose a lot of bl00d :/ my roommates said it looked like a crime scene
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BrandonSay

1y ago

Partial tonic-clonic myclonic seizures here, mostly have them in clusters while I sleep now
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Sunn

1y ago

I do. Not sure if it's a specific kind, but all I know is that I have tonic clonic seizures. It sucks, but I manage
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hydroepilepic21

1y ago

I do
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Blue001

1y ago

I think it’s hard having juvenile myoclonic and photo sensitive epilepsy because people label you as weak and incompetent. Also, I’m 20 so all my friends are either going out clubbing or going somewhere with flashing lights so I often feel left out. I get embarrassed that I have epilepsy so I never tell anyone because I don’t want them to view me differently
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MooGoober

1y ago

✋ generalised and photo sensitive epilepsy!
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Beckboop

1y ago

I used to be photosensitive, not sure if anyone else has had that experience
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Blue001

1y ago

I have photo sensitive epilepsy too. It’s nice to know I’m not a complete alien ☺️
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Blue001

1y ago

✋ I have juvenile myoclonic epilepsy too xx
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Ash.G

1y ago

I'm curious what myoclonic epilepsy is. I've never really learned about it before.
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Beckboop

1y ago

same ✋
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Pero

1y ago

I have myoclonic as well
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strugglebus

1y ago

✋I have sleep-sensitive epilepsy and juvenile myoclonic epilepsy

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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