1lovemyheatingp8d

535d

How many surgeries has everyone had since being diagnosed with Endometriosis?

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Top reply
    • flower_goddess

      529d

      none. my insurance wont pay for it plus im only 17 :( im trying to get a job so i can save up to get it though

    • PacoPeep

      535d

      2 since being diagnosed. I was one of the lucky ones. I was diagnosed a year before my first surgery which was excision/aborted hysterectomy. My second surgery was a complete hysterectomy done 4 months after the past one. Feeling better today than I have in so long

    • 1lovemyheatingp8d

      535d

      @PacoPeep Did the hysterectomy take away all the pain?

      • Pug_Mom

        530d

        @1lovemyheatingp8d pardon my mouth but hell no!!

    • SarahBeara

      535d

      About to be two. My next one is in June. I had excision surgery back in the beginning of 2020 and my symptoms are coming back :(. I was diagnosed with DIE

      • 1lovemyheatingp8d

        534d

        @SarahBeara what is DIE if you don’t mind me asking

        • Paincess

          530d

          @1lovemyheatingp8d Deep Infiltrating Endometriosis

    • Pug_Mom

      530d

      ✋ Sadly, I had my 10th in 2021.

      • 1lovemyheatingp8d

        530d

        @Pug_Mom oh my goodness! 10?!! That is a lot 😭

        • Pug_Mom

          529d

          @1lovemyheatingp8d I swear it never ends. 😥

    • hazyeclipse

      530d

      None. Can't afford it :(

      • 1lovemyheatingp8d

        530d

        @hazyeclipse I’m so sorry 😭. how have you been managing your symptoms?

        • hazyeclipse

          528d

          @1lovemyheatingp8d I take aygestin, which is a higher milligram formulation of birth control that's often used for endometriosis. It works fairly well but it's expensive when tacked on to my other meds, and I think it's causing hair loss :( I have no choice though, without it/with normal birth control (which used to be enough to make me able to live with it) my symptoms are intolerable.. like completely out of hand. It's basically just a bandaid/just masking the issue but I guess it'll have to do for now

    • flower_goddess

      529d

      none. my insurance wont pay for it plus im only 17 :( im trying to get a job so i can save up to get it though

    • Paincess

      529d

      Just the one. Saw the best surgeon I could find so I can save money over the long run having fewer surgeries. I have insurance for $400 a month and paid $7500 total for surgery out of pocket.

    • Torentino

      528d

      Two, I had a hysterectomy and following that I grew a benign tumor I had to have surgically removed.

    • Denali

      528d

      4 and it was not awesome.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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