See Alike in...

Alike App

Browser

1lovemyheatingp8d

743d

How many surgeries has everyone had since being diagnosed with Endometriosis?

Top reply
    • flower_goddess

      736d

      none. my insurance wont pay for it plus im only 17 :( im trying to get a job so i can save up to get it though

    • Denali

      736d

      4 and it was not awesome.

    • Torentino

      736d

      Two, I had a hysterectomy and following that I grew a benign tumor I had to have surgically removed.

    • Paincess

      736d

      Just the one. Saw the best surgeon I could find so I can save money over the long run having fewer surgeries. I have insurance for $400 a month and paid $7500 total for surgery out of pocket.

    • flower_goddess

      736d

      none. my insurance wont pay for it plus im only 17 :( im trying to get a job so i can save up to get it though

    • hazyeclipse

      737d

      None. Can't afford it :(

      • 1lovemyheatingp8d

        737d

        @hazyeclipse I’m so sorry 😭. how have you been managing your symptoms?

        • hazyeclipse

          736d

          @1lovemyheatingp8d I take aygestin, which is a higher milligram formulation of birth control that's often used for endometriosis. It works fairly well but it's expensive when tacked on to my other meds, and I think it's causing hair loss :( I have no choice though, without it/with normal birth control (which used to be enough to make me able to live with it) my symptoms are intolerable.. like completely out of hand. It's basically just a bandaid/just masking the issue but I guess it'll have to do for now

    • Pug_Mom

      737d

      ✋ Sadly, I had my 10th in 2021.

      • 1lovemyheatingp8d

        737d

        @Pug_Mom oh my goodness! 10?!! That is a lot 😭

        • Pug_Mom

          736d

          @1lovemyheatingp8d I swear it never ends. 😥

    • SarahBeara

      742d

      About to be two. My next one is in June. I had excision surgery back in the beginning of 2020 and my symptoms are coming back :(. I was diagnosed with DIE

      • 1lovemyheatingp8d

        742d

        @SarahBeara what is DIE if you don’t mind me asking

        • Paincess

          738d

          @1lovemyheatingp8d Deep Infiltrating Endometriosis

    • 1lovemyheatingp8d

      743d

      @PacoPeep Did the hysterectomy take away all the pain?

      • Pug_Mom

        737d

        @1lovemyheatingp8d pardon my mouth but hell no!!

    • PacoPeep

      743d

      2 since being diagnosed. I was one of the lucky ones. I was diagnosed a year before my first surgery which was excision/aborted hysterectomy. My second surgery was a complete hysterectomy done 4 months after the past one. Feeling better today than I have in so long

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion