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tmj5000

2y ago

Struggling with Endometriosis Pain Management

I was diagnosed with endo 2 months ago after being in excruciating pain and multiple ER trips and imaging. I went to an endo specialist Wednesday and she told me I had the worst case she had seen at my age. She gave me 3 prescriptions and none of them even make a dent in the pain. when I reached out to inform them of this they said if my pain is that bad yo go to the ER. I am feeling very upset and frustrated because for the last month ER's and gyno's essentially keep passing me back and forth. I am in so much pain and haven't been able to work. I just want to get to feeling better so I can live my life. any tips for advocating to actually get help with pain management?

Your answer

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Barrfamily

2y ago

Hot and cold roll stuff that u put on at night my pain had gotten worse in the past year and got out on three types of meds
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Barrfamily

2y ago

Use a heating pad and
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Smoores

2y ago

Also I have a mirena IUD which has significantly reduced my period flow. It’s given me some unpleasant side effects though like acne and inconsistent periods but they’re always a mild flow which is what you need with endo
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Smoores

2y ago

It took me 12 years to get an endometriosis diagnosis. I was accused of being a hypochondriac and so on and doctors would not help me! I eventually saw an OBGYN dr who specialized in endometriosis laparoscopic surgery and childbirth (he also delivered my youngest child). He removed what he called the “deep seeded endo.” They basically burn it off. The surgery was non invasive but took a month to recover. Did you have surgery for your endometriosis? There is also a new medication available for people with endometriosis called orillisa and it worked for me but I can’t take it anymore because of my chronic migraines. I would ask around locally to see if you can find a dr who understands all about endometriosis surgery. As well as consider seeing a natural or functional medicine dr who can get hormone level tests done for you and get you on “seed cycling” (Where you eat certain seeds and oils during certain times of the month to regulate hormones)
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Barrfamily

2y ago

🙌 it took me many years they should not of shook u off
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BamaGirl97

2y ago

Try finding a specialist. There are a lot around the world. The best thing I have found is the less periods I have, the less my pain is. My obgyn put me on continuous birth control so I skip the placebos and it has made a HUGE difference, but talk to a doctor before doing that
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aurora395

2y ago

that's interesting, depo has helped me so much. I'm under 20 so they really don't want to offer me much. I've only been on it for a year and I'm afraid I'll be worse when I come off it
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tmj5000

2y ago

I was on a continuous birth control when it started getting bad, and then they swapped me to depo which I feel like does nothing rn
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tosha97

2y ago

My best advice is to find a different doctor, also try applying a heating pad on low to medium heat when the pain is bad. Also try and take advil and Midol (not pampron).

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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