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tmj5000

658d

I was diagnosed with endo 2 months ago after being in excruciating pain and multiple ER trips and imaging. I went to an endo specialist Wednesday and she told me I had the worst case she had seen at my age. She gave me 3 prescriptions and none of them even make a dent in the pain. when I reached out to inform them of this they said if my pain is that bad yo go to the ER. I am feeling very upset and frustrated because for the last month ER's and gyno's essentially keep passing me back and forth. I am in so much pain and haven't been able to work. I just want to get to feeling better so I can live my life. any tips for advocating to actually get help with pain management?

Top reply
    • Barrfamily

      654d

      Hot and cold roll stuff that u put on at night my pain had gotten worse in the past year and got out on three types of meds

    • Barrfamily

      654d

      Hot and cold roll stuff that u put on at night my pain had gotten worse in the past year and got out on three types of meds

    • Barrfamily

      654d

      Use a heating pad and

    • Smoores

      656d

      Also I have a mirena IUD which has significantly reduced my period flow. It’s given me some unpleasant side effects though like acne and inconsistent periods but they’re always a mild flow which is what you need with endo

    • Smoores

      656d

      It took me 12 years to get an endometriosis diagnosis. I was accused of being a hypochondriac and so on and doctors would not help me! I eventually saw an OBGYN dr who specialized in endometriosis laparoscopic surgery and childbirth (he also delivered my youngest child). He removed what he called the “deep seeded endo.” They basically burn it off. The surgery was non invasive but took a month to recover. Did you have surgery for your endometriosis? There is also a new medication available for people with endometriosis called orillisa and it worked for me but I can’t take it anymore because of my chronic migraines. I would ask around locally to see if you can find a dr who understands all about endometriosis surgery. As well as consider seeing a natural or functional medicine dr who can get hormone level tests done for you and get you on “seed cycling” (Where you eat certain seeds and oils during certain times of the month to regulate hormones)

      • Barrfamily

        654d

        @Smoores 🙌 it took me many years they should not of shook u off

    • BamaGirl97

      658d

      Try finding a specialist. There are a lot around the world. The best thing I have found is the less periods I have, the less my pain is. My obgyn put me on continuous birth control so I skip the placebos and it has made a HUGE difference, but talk to a doctor before doing that

      • aurora395

        655d

        @BamaGirl97 that's interesting, depo has helped me so much. I'm under 20 so they really don't want to offer me much. I've only been on it for a year and I'm afraid I'll be worse when I come off it

        • BamaGirl97

          655d

          @aurora395 i went on it at 17 and was off of it within 6 months. Then I just had to deal with the pain every month before finally being diagnosed at 19

      • tmj5000

        658d

        @BamaGirl97 I was on a continuous birth control when it started getting bad, and then they swapped me to depo which I feel like does nothing rn

        • Mop

          658d

          @tmj5000 why'd they swap you off?

        • BamaGirl97

          658d

          @tmj5000 depo did NOTHING for me. I bled the entire time I was on it. Have you had surgery yet? Having surgery to remove the tissue helped me so much! Personally I went 3 and a half years before I needed another one.

    • tosha97

      658d

      My best advice is to find a different doctor, also try applying a heating pad on low to medium heat when the pain is bad. Also try and take advil and Midol (not pampron).

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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