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Stinkygoose30

47d

How did you know you had endometriosis?? I've been struggling with numerous symptoms and recently it's been getting way worse. Also how did you finally get a laparoscopy??

Top reply
    • Stinkygoose30

      37d

      @Hazel555 Thank you so much!! I actually went to the endocrinologist yesterday because I had a super long period (42 days) and she wanted to make sure I wasn't anemic since I also have an autoimmune disease and I had told her that during all of it I went to the gyno who suspected endometriosis and she decided to order me an ultrasound and check how thick my lining is and said we'll go from there, then she told me she'd set me up with a new gyno who can potentially get me a laparoscopy:)

    • Hazel555

      45d

      Goodmorning! 🤗 so, my personal journey with endo.... I've been "endoing" since I was around 11 and first has My periods, I went to numerous doctors and no one ever took me seriously or just dismissed me...fast forward to this year... at my gyno I was telling her my symptoms and she suggested some tests such as transvaginal ultrasound and trans abdominal pelvic ultrasound, blood work and period tracking and based off of my ultrasound results she was actually able to determine that I have endometriosis, laparoscopy is NOT the one and only way to find endometriosis but it is the most common way and thats mainly because many endometriosis lesions are so small or so well hidden within the body that you can't see them on ultrasounds and often dont discover them until you do exploratory surgery... that being said talk to your gyno or primary doctor about your concerns and ask them for the tests I named above just to rule out other things and possibly see the endo on those tests and if those tests don't show anything then you can ask for exploratory surgery...you have to be very open and blunt honestly about your pain and your symptoms .. you deserve to be heard... as for my symptoms I knew something was wrong but I didn't know what till this year... My symptoms - stomach pain - flank pain - back pain - pelvic pain - extreme pain during my periods - Vomiting - Naseua - bloating - GERD - pain shooting down my legs - shortness of breath - heavy cycles - irregular cycles - extreme mood swings during and before my period (the week before) - insane cramping (sometimes starting the week before my period and lasting till my period is over) Endometriosis is a whole body system wide inflammatory disease It's not just in the pelvic region, it can spread to other organs and areas of the body and cause symptoms that might not correlate to the pelvic region and Everyone's endo is different and we all experience various symptoms so you know your body the best and if you feel Something is going on listen to your body and see a gynecologist to get tested for endo I hope this has helped and I wish you all the best ❤️

      • Hazel555

        45d

        @Hazel555 For context I am now 26 turning 27 so it took me 16 years of speaking out to be heard and finally taken seriously and diagnosed. My endo lesions were seen all around my pelvic region and my abdomen as well on the ultrasounds

        • Stinkygoose30

          37d

          @Hazel555 Thank you so much!! I actually went to the endocrinologist yesterday because I had a super long period (42 days) and she wanted to make sure I wasn't anemic since I also have an autoimmune disease and I had told her that during all of it I went to the gyno who suspected endometriosis and she decided to order me an ultrasound and check how thick my lining is and said we'll go from there, then she told me she'd set me up with a new gyno who can potentially get me a laparoscopy:)

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Some individuals suspected they had endometriosis due to severe pelvic pain that was different and more severe than past pains. One person mentioned it took them 7 years to get diagnosed, and the diagnosis was confirmed via laparoscopic surgery, which is currently the only diagnostic method. Another individual was suspected of having endometriosis when they went to the ER for severe pelvic pain, and after explaining their symptoms and what was found on ultrasounds, they were referred to a gynecologist specialist who eventually performed their laparoscopic surgery.

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