Diagnosed with Endometriosis - What to Expect?

I personally did not have a MRI imagining. I had a transvaginal ultrasound that revealed what they thought was an ovarian cyst, but come to find out it was Endo. I was diagnosed with Stage 2 via diagnostic laparoscopy.

So sad just perusing through what people have written, how much these docs ro the most part have sort of been "experimenting" in us

Nope, no MRI imaging before surgery. My doctors don’t believe it’ll do anything really considering endo is a surgical only diagnosis and I fit the symptoms to a T. They went in, I was misdiagnosed as stage 1 by an OBGYN in 2018 and I had a repeat surgery by a specialist in 2020 who diagnosed me appropriately with early stage 3

Mine essentially said "considering you're having these issues and it wasn't anything they assumed previously, then we can essentially assume it must be Endo." MRI wasn't done on my side, and it never showed it in screenings since it was such a small area that caused all the pain.

I understand that I hope u feel better soon

Have u tried applying for Medicaid

I ended up with a stage 4 diagnosis after untreated mistreated misdiagnosed Endo is been dealing with monthly vomiting nausea pelvic spasms that floored me. After having a colonoscopy endoscopy and wand ultrasound that found nothing (actually it triggered pelvic spasms at the office) I then had a very dismissive gyno look at me and ask me if I didn't think it was just gas🤔...then looked at my bloated belly and asked me if I was done with my uterus cause a hysterectomy was my solution. A GYno with no Endo belly clue or regard for the patients pain. As I was leaning forward I smiled thanked her and left her office. Second gyno little more compassionate but I don't think she had the skill set to deal with what she found when they went in. I was told my intestines had begun wrapping behind my rectum which explained the slew of GI issues and bowel obstructions etc not to mention the immense pain especially towards the "build up" I was told they found a lot every where. There were no pictures of the adhesions removed which lead me to believe she oblated instead of excised. I feel burnt and leaky. One big question I should have asked was how many excession surgeries have you done. Unfortunately I found Nancy's nook after my surgery it's an amazing resource includes great questions when you are interviewing doctors for your care. I am now on my 3rd gyno this doc was off Nancys nook list and I'm hoping I m on my road to better care now. As far as post surgery My lap was this June and I still can't sit up straight and stand for longer than 3 to 4 hours without sharp discomfort and I feel almost like what I can only like to an absesses all over my abdomen and they just keep multiplying. I found out later you can have other underlying issues like EDS that can cause healing to be really slow. Interesting how both correlate to connective tissue issues. I was placed on a slew of petroleum based pain killers, muscle relaxers that didn't even touch the pain. Recently learned other countries are finding a combo of CBD and THC actually stop Endo tissue from growing and hey it takes command over the pain without taxing your bone density or liver like the "gold standard" meds I was taking and then due to their side effects adding to. I have heard Endo being described by some like cancer that doesn't kill. Non functional on all the other meds including any form of birth control that my body wretches and they refused to absorb a girl has to work and with a clear mind. Or as close to cause we all know how the fog sets in when it really grips you. For me I've actually finally found some relief surprised but not shocked that it was something natural that worked in rhythm with my body that had the most positive affect. Taking each day as it comes while I wait for the new appointment under better care 🤞. At work my schedule has been adjusted to part time permanent due to this being a perm disability. Can't say how grateful I am for having folks at my job advocate for me more than most docs in the beginning cause when you aren't feeling great your passion becomes a chore. It's hard to think or advocate for yourself when all you are doing at times is just trying to get to the next hour and let the pain pass. A big piece of advice if at any point you feel your doctor/s are not listening remember they are providing you with a service. One they get paid very well for and the least they can do is listen and at the very least if that isn't being accomplished, Kow you can right then and there walk away. ❤️💕🙏 To everyone going through this