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Belugabear

736d

After two excisions, my endo has officially come back, as diagnosed by an ultrasound. I’m frustrated and upset. I thought I was done with this! Just needed to rant.

Top reply
    • KitKat1450

      722d

      @Belugabear thanks for the advice!!

    • KitKat1450

      722d

      That sounds infuriating to go thru. Im so sorry you’re going thru this and your feelings are so valid. My doctor wants me to do endo laparoscopic surgery soon and my biggest concern is going through all of that for no benefit. Gone thru multiple procedures, surgery, treatments in the last year for other issues and lot of pain and flaring for NO benefit and and the docs didn’t tell me that was a possibility or how bad it could be. I ended up being one of the rare ppl that got adverse reactions from nearly every one. I’m so skeptical now and finding it much harder now to have some hope for relief. I hope you can get some relief soon💕🙏🏻

      • Belugabear

        722d

        @KitKat1450 good luck! Definitely go to an excision specialist! While it turned out that my endo wasn’t my only issue and it did come back, I don’t regret the decision at all

        • KitKat1450

          722d

          @Belugabear thanks for the advice!!

    • Snowy

      722d

      I'm so sorry. Endo really freaking sucks... to put it mildly. I'm scared because I'm still young (21) and I can tell it's slowly getting worse even with taking BC. I used to not get much pain between periods on BC, but slowly it's getting worse and more frequent. Now I wake up most days with pain. I want to have kids! I'm scared that if the pain is getting worse it means the scar tissue is spreading... Anyway, long story short, endo is horrible and I'm so sorry sister ❤️

    • Lizherrera_22

      735d

      ❤️

    • Bobbybiy

      735d

      ❤️

    • Lizherrera_22

      735d

      I have had excision surgery before but my endo got worse so I have been just dealing with it and it's has been hard

      • Belugabear

        735d

        @Lizherrera_22 sorry you’re dealing with that

        • Lizherrera_22

          735d

          @Belugabear I have been dealing with it for 12 yrs and I just hate when the pain gets debilitating

    • ayyyye

      736d

      endo is so frustrating, especially since doctors don't always listen to us about our pain. i finally had a hysterectomy a year ago because i just couldn't deal with it anymore, and i still have some pain

      • ash007

        727d

        @ayyyye how much better did you feel after healing from a hysterectomy? I'm at the point of wanting to rip mine out from endo B's.

        • ayyyye

          724d

          @ash007 the recovery from the hysterectomy was painful, but once i healed it did help my overall pain. I'd say my pain is about half as bad as it was before the surgery.

        • Belugabear

          727d

          @ash007 it helped with the monthly cyclical pain which was great but didn’t get rid of my daily pain

      • Belugabear

        735d

        @ayyyye yep I’ve also had a hysterectomy and still have pain

    • 1lovemyheatingp8d

      736d

      I’m so sorry that you’re going through this. I’m a year post surgery and my endo is back as well

      • Belugabear

        736d

        @1lovemyheatingp8d I’m sorry yours is too! It’s really the worst

    • wise

      736d

      I'm so sorry my darling. I had the same issue within a month after my first surgery, and my ob has adamantly refused persuing a second op citing my medically induced amenorrhea. really hammers home how permanent this condition is. I just want my body to work properly but that is apparently too big an ask

      • Belugabear

        736d

        @wise I have no clue how quickly mine came back but my pain never really went away! I’m sorry your ob isn’t helpful, best of luck!!

        • wise

          736d

          @Belugabear same to you. it's rough out here but we'll get through it

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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