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Birdies

1y ago

Living with Endometriosis and Pelvic Congestion Syndrome

Does anyone have both endo and PCS?

Your answer

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Emmyyy

1y ago

I have endo! I don't have pcs but I know people that do and I know it is UNBEARABLE. Both are very sucky to have, my cat helps with my endo he pushes on my stomach.
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Birdies

1y ago

does it hurt when he pushes on your stomach? It hurts to push on my lower left side, wondering if it's an endo symptom
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Birdies

1y ago

I've never been officially diagnosed through a lap with endo (I have with PCS through a CTV scan) they assume I have it because it runs in my family and I have all the main symptoms (tmi but my grandma had blood clots the size of baseballs that would clog the toilet)
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Birdies

1y ago

Does it hurt for you to push on your uterus area? I think it's an endo symptom but not sure, the spot that hurts to touch has been hurting without touching it lately
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Birdies

1y ago

I used too, I bled from January-June straight before they finally switched my bc again and now since I switched I've only spotted/bled after sex
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Barrfamily

1y ago

I hope you feel better soon
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Barrfamily

1y ago

I had that issue too they switched my birth control and did the d and c I still have lot of pain just No bleeding
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Barrfamily

1y ago

Do u bleed heavily too
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Barrfamily

1y ago

Yep I am in my 30s I only have one ovary I was diagnosed a year ago and b4 they did my d And surgery they told me I had pcos too
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Birdies

1y ago

I can't always tell if my general pain is from endo or PCS but some specific PCS symptoms I have are my left foot getting hot red/purple, pain with standing too long/pain with sitting too long, veins popped out in my stomach/vulva/legs/feet (mostly always the left side), numb legs/tingly legs, persistent genital arousal disorder (PGAD) - one of the worst symptoms tbh, vulvar itching, feeling full and very bloated when I go from laying down to standing and several others that are also endo symptoms. I am only 20 years old and want children so I am trying to stay away from vein sclerotherapthy and coil embolizatio...they just keep switching my bc and hoping it does something but I'm exhausted/depressed and just want relief. I sure you can both understand that feeling
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Barrfamily

1y ago

Yes what are your symptoms I’m so sorry
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Barrfamily

1y ago

I’m sorry
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Barrfamily

1y ago

I pcos and endometriosis
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Barrfamily

1y ago

Do u pcos and endometriosis
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Birdies

1y ago

I have pelvic congestion syndrome (PCS) and endo and I'm just looking for someone to talk to about it.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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