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Birdies

616d

Does anyone have both endo and PCS?

Top reply
    • Emmyyy

      612d

      @Birdies It definitely hurts but it's not unbearable but also everyone has different pain management..it's like a massage where you feel like the massage didn't help and then you feel better!!

    • Emmyyy

      615d

      I have endo! I don't have pcs but I know people that do and I know it is UNBEARABLE. Both are very sucky to have, my cat helps with my endo he pushes on my stomach.

      • Birdies

        612d

        @Emmyyy does it hurt when he pushes on your stomach? It hurts to push on my lower left side, wondering if it's an endo symptom

        • Emmyyy

          612d

          @Birdies It definitely hurts but it's not unbearable but also everyone has different pain management..it's like a massage where you feel like the massage didn't help and then you feel better!!

    • Birdies

      616d

      I've never been officially diagnosed through a lap with endo (I have with PCS through a CTV scan) they assume I have it because it runs in my family and I have all the main symptoms (tmi but my grandma had blood clots the size of baseballs that would clog the toilet)

    • Birdies

      616d

      Does it hurt for you to push on your uterus area? I think it's an endo symptom but not sure, the spot that hurts to touch has been hurting without touching it lately

    • Birdies

      616d

      I used too, I bled from January-June straight before they finally switched my bc again and now since I switched I've only spotted/bled after sex

      • Barrfamily

        616d

        @Birdies I hope you feel better soon

        • Birdies

          616d

          @Barrfamily thank you, means a lot to let me talk about it

      • Barrfamily

        616d

        @Birdies I had that issue too they switched my birth control and did the d and c I still have lot of pain just No bleeding

        • Birdies

          616d

          @Barrfamily same, that's my only symptom that went away with the new one

    • Barrfamily

      616d

      Do u bleed heavily too

    • Barrfamily

      616d

      Yep I am in my 30s I only have one ovary I was diagnosed a year ago and b4 they did my d And surgery they told me I had pcos too

    • Birdies

      616d

      I can't always tell if my general pain is from endo or PCS but some specific PCS symptoms I have are my left foot getting hot red/purple, pain with standing too long/pain with sitting too long, veins popped out in my stomach/vulva/legs/feet (mostly always the left side), numb legs/tingly legs, persistent genital arousal disorder (PGAD) - one of the worst symptoms tbh, vulvar itching, feeling full and very bloated when I go from laying down to standing and several others that are also endo symptoms. I am only 20 years old and want children so I am trying to stay away from vein sclerotherapthy and coil embolizatio...they just keep switching my bc and hoping it does something but I'm exhausted/depressed and just want relief. I sure you can both understand that feeling

    • Barrfamily

      616d

      Yes what are your symptoms I’m so sorry

    • Barrfamily

      616d

      I’m sorry

    • Barrfamily

      616d

      I pcos and endometriosis

    • Barrfamily

      616d

      Do u pcos and endometriosis

      • Birdies

        616d

        @Barrfamily I have pelvic congestion syndrome (PCS) and endo and I'm just looking for someone to talk to about it.

        • 1lovemyheatingp8d

          616d

          @Birdies I’m sorry you’re going through this 😭. I haven’t heard of Pelvic Congestion Syndrome. What are your symptoms if you don’t mind me asking?

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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