Need advice for muscle pain with Elhers Danlos

Stay away from NSAIDs you will destroy your kidneys

I have not found relief from muscle relaxers, but I have from stronger NSAIDs like Meloxicam (if that is a safe option for you of course) but if you have a chance to see if it will help it's definitely worth checking for your health!

I only take to help with my extreme spasms they do help I don't take often because I build tolerances to things easy I would take to see if you get improvements but remember muscles hold the joints so taking could increase risk of dislocations be careful if you are wanting to take

We shouldn’t take muscle relaxers. And it’s been a long day so I don’t have the brain capacity to explain it tonight. #brainfog. I’ll try to remember to hop back on tomorrow

I take Carisoprodol, and it has been one of the only things that has helped this much!

Truthfully, doing ice on my back and neck for 20-minutes twice a day has provided more relief and healing for my muscles than muscle relaxers have. While muscle relaxers do help relieve spasms for me, I often end up with more subluxations the next day or new trigger points in my neck and shoulders.

I do daily Epsom salt baths and use a foam roller on my legs and peanut ball roller on my back. Actively loosening the muscles is the most effective thing for me, and what my physical therapist recommends. It really helps me to relax before bed and wake up feeling good the next morning. I can make it through my days now but really just have to be consistent with it

I haven’t found much relief from them personally. They seem to either do nothing, or relax too much and I sublimate a lot easier. The one thing I’ve found they do help with is the spasms I get in my ribs occasionally and the regular human back pain. But for me it’s almost not worth it. But everyone is different and hopefully they work better for others!

I don't, but I want to follow this thread to see what others are saying.

Muscle relaxers have been great for me but it was hard to find the right one. Originally I was on tizanadine, which relaxed and felt great, but I was having more subluxations the next days. Now I'm on methocarbomal and it's been much better.

I’ve heard muscle relaxers can cause a lot more subluxations and dislocations, because the muscles have to work really hard to keep everything in place. Maybe a TENS unit would help? Or getting accommodations for little breaks with those portable leg squeezers/massagers?