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Is there anyone on here that has Ehlers-danlos syndrome that is willing to talk with me? My granddaughter, whom I have custody of, has been referred to a Rheumatologist for an evaluation of Ehlers-danlos. I am at a complete loss of what to expect and what type of questions I should be asking. I am not very good at researching online and only come up with definitions of what it is and some symptoms. Any help and guidance is greatly appreciated! Her evaluation is September 7th.
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Ehlers-Danlos Syndrome (EDS)
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620d
I'm here if you need to talk as well and I'm glad you are trying to learn more to help your granddaughter. She i going to need you, I don't know where I would be in my journey if I didn't have the support of several family members and my friends
Thank you both so much! I will message you soon š
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I'm here too. Just shoot me a message. I know the process can be long and scary.
I'm here if you want to talk. I don't mind a bunch of questions.
ā This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision
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