Feeling Lost After Ehlers-Danlos Syndrome Diagnosis

I was just diagnosed with Ehlers-Danlos syndrome and I feel so lost

Your answer

Jo20

2y ago

This is probably a weird question but I’m eating crackers right now and I’m pretty sure my jaw is not like dislocating but like you know what I mean like popping and it hurts and it’s like I have to push on it to get it back in

jemappelletony

2y ago

There is definitely a steep learning curve.

Jo20

2y ago

I have to get foot and ankle surgery next summer because my foot turns in and my ankle pops in and out to much has anyone had that surgery

Smoky_Fred

2y ago

Sounds familiar, We're here to walk you through this journey and help you live with it, it's possible!

Tinie

2y ago

I completely understand I just learned I had it last month. The thing that has made me feel better is realizing it just has a name now but you have been living with it before it had a name. Not changed you just have answers now

Rachie

2y ago

The first few months are the hardest trust me while you’re figuring it out and what works best for you but it does get easier

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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