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Jo20

857d

I was just diagnosed with Ehlers-Danlos syndrome and I feel so lost

Top reply
    • Jo20

      852d

      This is probably a weird question but I’m eating crackers right now and I’m pretty sure my jaw is not like dislocating but like you know what I mean like popping and it hurts and it’s like I have to push on it to get it back in

    • Jo20

      852d

      This is probably a weird question but I’m eating crackers right now and I’m pretty sure my jaw is not like dislocating but like you know what I mean like popping and it hurts and it’s like I have to push on it to get it back in

    • jemappelletony

      853d

      There is definitely a steep learning curve.

    • Jo20

      856d

      I have to get foot and ankle surgery next summer because my foot turns in and my ankle pops in and out to much has anyone had that surgery

    • Smoky_Fred

      857d

      Sounds familiar, We're here to walk you through this journey and help you live with it, it's possible!

    • Tinie

      857d

      I completely understand I just learned I had it last month. The thing that has made me feel better is realizing it just has a name now but you have been living with it before it had a name. Not changed you just have answers now

    • Rachie

      857d

      The first few months are the hardest trust me while you’re figuring it out and what works best for you but it does get easier

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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