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spider_girl917

Updated 9mo ago

Seeking advice on Ehlers Danlos Syndrome diagnosis

Is anybody diagnosed with or seeking a possible diagnosis of ehlers danlos syndrome? it's been coming up in some of my symptom research lately and I'm not sure how to bring it up with my doctor and have them take it seriously.

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mobilityaidbabe

1y

I am going in for an official diagnosis next month, but I've been unofficially diagnosed with hEDS by my primary care provider and physical therapist. Before landing on EDS for sure, look into other connective tissue disorders to take into consideration. If nothing else just to rule some out. When I brought it up to my doctor I left out the specific condition and said just connective tissue disorder. I supported that by saying a wide range of pain and multiple full-body conditions could be an underlying disease and that I wanted to look into the possibility of a connective tissue disorder. Letting your doctor connect the dots that you give them usually gives them enough of an ego boost that they might actually listen lol. Good luck, friend 💕🙌

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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