See Alike in...

Alike App

Browser

spider_girl917

314d

Is anybody diagnosed with or seeking a possible diagnosis of ehlers danlos syndrome? it's been coming up in some of my symptom research lately and I'm not sure how to bring it up with my doctor and have them take it seriously.

    • mobilityaidbabe

      264d

      I am going in for an official diagnosis next month, but I've been unofficially diagnosed with hEDS by my primary care provider and physical therapist. Before landing on EDS for sure, look into other connective tissue disorders to take into consideration. If nothing else just to rule some out. When I brought it up to my doctor I left out the specific condition and said just connective tissue disorder. I supported that by saying a wide range of pain and multiple full-body conditions could be an underlying disease and that I wanted to look into the possibility of a connective tissue disorder. Letting your doctor connect the dots that you give them usually gives them enough of an ego boost that they might actually listen lol. Good luck, friend 💕🙌

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

Thank you! Your submission has been received!
Oops! Something went wrong while submitting the form.

Want to chat or share? Download the Alike app now and get complete access to Alike.health's unique features.

Alike health

Some people have mentioned that they are seeking a diagnosis or have been diagnosed with Ehlers Danlos Syndrome. To bring it up with your doctor, it's important to be upfront about your suspicions and symptoms. You may want to do some research on the condition beforehand, as some physicians might not be familiar with EDS. It could also be helpful to see a specialist in genetic disorders for a more accurate assessment.

Find people who are
experiencing a similar
medical reality

100% Free
100%
Free

Download Alike for the full experience

JOIN

View All

Bupropion

night sweats

paranoid

Valium

sertraline

palpitations

Anxiety (Including GAD)

Depression

palpitations

Depression

Valium

Bupropion