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Is anybody diagnosed with or seeking a possible diagnosis of ehlers danlos syndrome? it's been coming up in some of my symptom research lately and I'm not sure how to bring it up with my doctor and have them take it seriously.

    • mobilityaidbabe


      I am going in for an official diagnosis next month, but I've been unofficially diagnosed with hEDS by my primary care provider and physical therapist. Before landing on EDS for sure, look into other connective tissue disorders to take into consideration. If nothing else just to rule some out. When I brought it up to my doctor I left out the specific condition and said just connective tissue disorder. I supported that by saying a wide range of pain and multiple full-body conditions could be an underlying disease and that I wanted to look into the possibility of a connective tissue disorder. Letting your doctor connect the dots that you give them usually gives them enough of an ego boost that they might actually listen lol. Good luck, friend 💕🙌

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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Some people have mentioned that they are seeking a diagnosis or have been diagnosed with Ehlers Danlos Syndrome. To bring it up with your doctor, it's important to be upfront about your suspicions and symptoms. You may want to do some research on the condition beforehand, as some physicians might not be familiar with EDS. It could also be helpful to see a specialist in genetic disorders for a more accurate assessment.

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Anxiety (Including GAD)