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Mickey_Buff

693d

Hi I'm Mickey. I was wondering if anyone else who has Ehlers-danlos when did you start becoming more dependent on having to use a mobility aid like a wheelchair, crutches, cane, or walker.

Top reply
    • mobilityaidbabe

      333d

      I have POTS because of my hEDS so I started using a wheelchair when I couldn't walk/stand for very long without passing out. I'm working in physical therapy on my orthostatic tolerance and have started using a walker as an instant chair for going out. When I have hip and knee injuries I use mobility aids as needed.

    • mobilityaidbabe

      333d

      I have POTS because of my hEDS so I started using a wheelchair when I couldn't walk/stand for very long without passing out. I'm working in physical therapy on my orthostatic tolerance and have started using a walker as an instant chair for going out. When I have hip and knee injuries I use mobility aids as needed.

    • Loki.a.mess

      333d

      I alternate between forearm crutches, a wheelchair, and heavy duty knee braces. The knee braces were my first aid about 6 years ago, the forearm crutches came about 2 years ago, and I recently started accepting that sometimes I'll be in a wheelchair.

    • Mickey1210

      349d

      I am also Mickey I have vascular ehlers danlos syndrome I use AFO braces which help a lot and I also have forearm crutches that I take with me when I know I’m going to be walking a lot

    • ChronicallyKitteh

      351d

      I used a walking stick from about my mid 20s, then ventured to getting a rollator with a seat I use most of the time, and I got my wheelchair earlier this year and I'm 31 now, although to be honest it's the POTS that mostly has be using my wheelchair

    • Student_girl

      352d

      I use crutches and AFO braces for short distances (in my house mostly), and a chair for anything longer. My chair is a custom one I got a prescription for and went through the rehab hospital to get.

    • chronicallyillchef

      352d

      I started using a body braces about six years ago, crutches for a while and then I got my first walking stick about 2 years ago (I am 23). It gives me a lot more freedom but sometimes a stick doesn't feel like enough, but I've not ventured into anything else yet.

    • Hope22424

      692d

      I have AFO braces, a cane, walker, and wheelchair but I mostly use the chair and braces. Honestly part of it is because I feel like "its more accepted to see a young person in a chair than any other mobility aid" wich I think is bs 😒 but I also use it more because I can't walk for long periods of time regardless.

      • Hope22424

        692d

        @Hope22424 Also just realized I didn't answer the question lol. I started using my braces about 2 years ago, cane one, and I got a chair off Amazon in February and it's been a life saver. How many times I've had to lay down in walmart lol 😆

    • AudaCity

      692d

      I am on and off my mobility aids but I ended up getting a walker when I had hip surgery and had also sprained my ankle on the other leg. It was SO helpful. Recently I had sprained both ankles and was in a wheelchair for a bit and that was also really helpful. I find that I just keep my medical assistance devices in my basement for when I need them because sometimes they're super needed and sometimes I'm fine.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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