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Allie8

2y ago

Dealing with EDS and frequent thumb dislocation

Hi! I have EDS and notice that my thumbs dislocate multiple times a day. This has been going on for years but has never really caused me pain. Recently it has become more painful though. I was wondering if anyone else has dealt with this and if you have found anything that has helped with it?

Your answer

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Allie8

2y ago

Thank you all so much for your suggestions! I’m looking into getting some splints!
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Tayport

2y ago

If you would like to go the ring splint route, I recommend zebra splints. Corrine is super sweet and helpful. She also has Eds so she tries to keep her prices pretty low!
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Tayport

2y ago

I saw a hand specialist and am awaiting surgery. Probably going to get a surgery date later today. I tried the ring splints I tried braces, but as soon as I took it off it would pop and swell again.
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Zel7

2y ago

I've heard silver ring splints are great, but pricy. In a pinch or when I can't use big splints or braces, I use sports tape. It seems to help hold things in place. If you need different options for tools or whatnot, I've been told to look up things for arthritis, especially if it's low-impact on the thumb. I do many things differently than typical to avoid putting pressure on my thumbs and wrists. If you have an OT or PT, they should be able to help with options too
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Blair_Waldorf

2y ago

i have a friend who uses these rings and they help her sooo much and look cute too!
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wise

2y ago

A thumb splint is a must for you. You're probably just developing some osteoarthritis in those joints since they move around so much. Early onset osteoarthritis and other use-related conditions and injuries are super common in people with EDS

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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