Looking for Support with Hypermobile EDS Diagnosis

We were diagnosed at 19 so now almost a decade ago 👀 which feels ridiculous tbh. We totally get it, it's so much more work to just do normal stuff and people don't understand that.

I was diagnosed about a year and a half ago, at 22. I've had a mess of symptoms as long as I can remember and no one ever knew why or seemed to care. It was a major relief to finally have a name for it and know it's real. No more accepting people blowing me off and saying it's all in my head. It's real, it's scary, it's overwhelming and exhausting. One day at a time. You're not crazy. You're not a hypochondriac. Your feelings and symptoms are valid and deserve acknowledgement. We're here for you ❤️

I was diagnosed June last year at age 32. I was always laughed at for being clumsy and dramatic

I was diagnosed with hEDS about a year ago and spent so long thinking and being told it was in my head. You're in the right place 💜

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