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SushiSavvy

662d

I am unofficially diagnosed with EDS but me being adopted Ive been unsure of health risks that runs in my genes. anyway I learned about EDS a month ago just bc I saw a video and it brought awareness to it. I always known I was different I I've tried to figure out what is is but its always been a dead end. eds fits everything that has ever set me apart every single problem I have it's connected. and it's crazy bc I wouldn't have guessed it was all related. tho it's hard it gives me some sort of closure in a way. but it came at the worst moment possible bc I'm pregnant and man just wasn't prepared for this... anyway any advice please feel free I have so much more to say but that's it in this post...

Top reply
    • Ink789

      660d

      Definitely see a specialist if you can, to get more understanding of eds on a professional side and if all goes well and a diagnosis later, i suggest Tens Unit Machine and physical therapy for pain. Hope you have a good day and what i wrote is somewhat beneficial!

    • Ink789

      660d

      Definitely see a specialist if you can, to get more understanding of eds on a professional side and if all goes well and a diagnosis later, i suggest Tens Unit Machine and physical therapy for pain. Hope you have a good day and what i wrote is somewhat beneficial!

    • Loocifer

      661d

      I’m also adopted and recently-ish god unofficially officially diagnosed with hEDS! It super sucks not being able to know what you are predisposed to genetically! I also found that this was just an ahha moment thag helped everything click

    • KoiPond

      661d

      I didn't know my POTS was due to hEDS when I was pregnant. All three of my now adult kids are hEDS and POTS. My eldest still opted to have two children, well aware of our genetic traits. In our family, we understood that happiness was not contingent on societal norms for "health". Best wishes on your pregnancy!

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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