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Danlosdude

633d

Does anyone with Eds have issues with low potassium? Mine has been incredibly low

Top reply
    • SAMHAIN

      616d

      @SAMHAIN Aaaaand the function failed haha sorry for the useless posts

    • SAMHAIN

      616d

      told me that* 🙄 We still don't have an edit button but at least we can directly correct ourselves now 😅 P.S: my GeneSight came back and I too have the homozygous MTHFR T/T allele... (Aka cannot convert folic acid to folate.)

      • SAMHAIN

        616d

        @SAMHAIN Aaaaand the function failed haha sorry for the useless posts

    • briannamal

      617d

      I do! I have hEDS, and I often have low potassium. If you happen to be on h1 blockers like Levocetirizine (like I used to be for MCAS) that can cause hypokalemia. I also tend to test for low potassium when I’m in the ER due to cortisol spikes - whenever it spikes it will lower your potassium (even when I have had 350mg earlier that day!)

    • SAMHAIN

      631d

      An old close friend who basically lived on the eds Discord server told me did somebody mentioned that once and pretty much everyone else chimed in and agreed. Also, the broken MTHFR gene is apparently a unanimous agreement for everyone who's taken the GeneSight™ test and knew for certain. Interesting...

    • Cory1988

      632d

      No, although I have heard this. I have many problems, but low potassium isn't one. Have you spoken to your doctor about this? I know there are pills and vitamins... But I personally would rather just change the things I eat instead; it's easier for me.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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