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Quackers

936d

How is my condition going to progress? With EDS my joints have began to pop out more and I’ve experienced a lot more pain. I’m going to start physical therapy, but will it get better?

Top reply
    • ladynblue

      935d

      My best advice.... be mindful of your body and how it moves, especially your range of motion. I have to remind myself "just because your joint can move that far doesn't mean it should." Being 44 years old, I've got a lot more damage to my body than someone who's younger. Take care of your body now that you know what's wrong. I used to do all kinds of things to show off how flexible I was. I'm paying for it now. Also, you are your best advocate! I'll say it again, you are YOUR best advocate. You know what you're feeling and what's happening to you. If a doctor doesn't take you seriously, find another.

    • ladynblue

      935d

      My best advice.... be mindful of your body and how it moves, especially your range of motion. I have to remind myself "just because your joint can move that far doesn't mean it should." Being 44 years old, I've got a lot more damage to my body than someone who's younger. Take care of your body now that you know what's wrong. I used to do all kinds of things to show off how flexible I was. I'm paying for it now. Also, you are your best advocate! I'll say it again, you are YOUR best advocate. You know what you're feeling and what's happening to you. If a doctor doesn't take you seriously, find another.

    • Smoky_Fred

      935d

      It's a great start! low impact muscle-strengthening exercise can make a great impact on your wellbeing. Don't lose hope yet!

    • Rachie

      936d

      I also wish I had better news for you but as you see in from the rest the comments there isn’t a lot, just make sure that you are taking care of you the best way you can and especially make sure that you focus on your mental health whenever you can

    • Maeve

      936d

      I wish I had better news lol. But the number of doctors I've seen who don't even believe my diagnosis is stupid

    • Chronicallyconfusing

      936d

      The only thing doctors tell me to do is drink more water, but that doesn’t help. I usually use KT tape which helps the joints to stay in place and lessen the lain

    • Quackers

      936d

      Well …that’s uplifting. Thanks!!! doctors don’t really have much to say about this condition

    • Maeve

      936d

      Not really... all we can do is manage

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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