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madd94

Updated 11mo ago

Struggling with Temperature Regulation with EDS/HSD

Anyone else with EDS/HSD have issues with temperature regulation? I’m in the middle of a flare up and am running a low grade fever, which I know is more common with systemic illnesses vs connective tissue disorders. I also generally have a lot of issues adjusting to different temperatures. Burning up and sweating at night with the air conditioning on, freezing at work while wearing layers, etc. Anyone else experience anything similar?

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randochikn

2y

I definitely do. My school has decided that the heater isn’t something they wanna use at a good level, so its always so cold when I am there. I already have hard days and when its cold inside the building i seriously have more trouble. Its quite annoying becayse everyone else is like asking me how I’m so cold. I even keep a jacket, doesnt help much. Its no fun in the summer, when my room is HOT and the AC rarely reaches my room. My mom has a naturally low body temp, and I sometimes am at 99 degrees when I go to the doctors (so I am usually higher)
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Knightstarr

2y

I have a terrible time trying to regulate my body temperature but I also have fibromyalgia and that is a common symptom. It helps when I have big socks and layers. But every time I move around I get hot and sweaty and when I am still I get the chills.
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Natti1076

2y

Yes, my Raynaud’s is out of hand and I have night sweats if the environment isn’t *just so*
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PaintedNebula

2y

I have night sweats really bad. It is usually only when I'm cold, so it happens all throughout the winter. The doctors' only insight has been that it could be a side effect from medication. It has been happening for years I think, but has gotten much worse the past couple of years. I think my thyroid also effects it, because I was diagnosed with Hashimotos about 2 years ago. Thyroid problems also contribute to temperature dysregulation. If my thyroid is out of balance it gets worse.
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tattooedlizardlady

2y

I'm 27 and have regular hot flashes. But I also have pcos, so I'm not sure which disorder it is from.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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