Dealing with Eyebrow Droop in EDS

EDS / zebras on here, do you ever have difficulty with a droopy eyebrow? It's only the right side and I get persistent headaches mainly on the right side - I have been seen by professionals so it's not dangerous I just wanted to know if others have experienced it and what they did to correct their eyebrow when it does this!

Your answer

ZebracornV

1y ago

Did you all discuss Myasthenia Gravis or do you have PoTS? What you’re describing sounds a lot like MG but I believe w EDS and PoTS things like this can happen from your muscles in that area getting weaker. I was prescribed mestinon for similar issues, as needed. It’s usually used by MG patients but apparently they are noticing that it is helpful for EDS and PoTS patients too. I there are some days I need to take multiple tablets and there are times where I don’t need it for a week or so.

Reb9

1y ago

I get chronic migraine with my EDS and although I don’t get dry eyebrows my eyelids swell and both my nose and eyes pour with every migraine.

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