Just got diagnosed with EDS, what now?

Find a good physical therapist who will listen to you and find a good orthopedic doctor too

Like the person before me said, find a good physical therapist that you trust and that LISTENS to what you say. A good physical therapist is a life saver. Get into exercise that is easy on joints. Rule of thumb: If a normal person can't do something with their joints then you shouldn't be because you can cause more damage.

I'd suggest seeing a physical therapist if you can. Avoid overworking yourself to where you'll have a flare up, but still stay active. Everyone's symptoms are different, my hypermobility and issues are more in my legs. I gave up on exercise for years and let my muscles weaken because of how painful it was, don't do what I did!! You don't have to run or anything fancy, but I've noticed I really really like walking! If you have days where you need a mobility aid, don't be afraid to use it!