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Duckie

2y ago

Looking for advice on EDS diagnosis and self-care

I haven’t been able to get formally diagnosed, but I’m looking to get seen about eds. I have literally All the symptoms, and when I showed my parents and grandmother (medical professional) they immediately agreed I have it and need to be seen. I have a really hard time keeping my shoulders and knees in place. It didn’t hurt to dislocate my shoulders before but I did something wrong and now it’s really painful. I don’t know much at all about how to care for myself with eds and all that comes with it. I have a bad habit of pushing myself physically until I break (literally. Did martial arts, broke a bone in my foot, practiced on it for 3 months then wound up in a wheelchair bc of all the other injuries that followed the initial one.) I could use any advice or information at all, real lying .

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Chrys

2y ago

EDS is a connective tissue disorder that effects collagen. It’ll impact your joints, skin, hair, and even circulation. Hyperextending and pushing yourself to your limits can worsen the condition. Take your time and listen to your body when it tells you it’s time to rest. With EDS you’ll need a lot of it.

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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