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catdad22

Updated 10mo ago

Looking for EDS Diagnosis in Midwest

Has anyone gotten diagnosed with EDS in Illinois, Indiana, Ohio, Kentucky, or Tennessee? Also, were you diagnosed under 18 or as an adult?

Can you help? connect today

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Leeeee

2y

I was diagnosed at Erlanger Hospital in Chattanooga Tennessee! They are an amazing group and I was diagnosed when I was 12!! ❤️
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Abbe

2y

Yes, Cincinnati childrens. I think I was about 14
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Alux

2y

who did you see in Cinci Childrens? I go there for my PRS but i may need to seek them out for hEDS diagnosis too LOL
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EDSzebra

2y

I was dx at Cincy Children’s by the geneticists in the connective tissue clinic. At that time, I was ~17. Feel free to DM me if you have any questions or want more in depth info! 😊
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curtain

2y

Instead of investigating, doctors in Tennessee said that nothing was wrong with me, and my rheumatologist diagnosed me with fibromyalgia. I ended up moving and getting diagnosed in North Carolina.
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TotalSpaceCase

2y

I was diagnosed in Kentucky at UK when I was 19!
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Alux

2y

wait who diagnosed you at UK? i’m from Lex but i’ve had bad luck with the doctors here
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InsidiousAnomaly

1y

Not in those states but I was 15/16 when I was diagnosed with hEDS in California. Wish I had more info elsewise.
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EDS4Life

1y

In TN as an Adult!
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Student_girl

1y

In MN at age 16
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Flower_Pup

1y

I was diagnosed by my primary doctor at 19. I’m in Gastonia, NC.
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yaisitis

1y

Got diagnosed in Indy at 22~ I was born with and had surgery at a young age for abducted thumb too tho and now that's actually considered an EDS type itself so I was kind of diagnosed as a child but not really lol

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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