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catdad22's Post
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catdad22

1y ago

Looking for EDS Diagnosis in Midwest

Has anyone gotten diagnosed with EDS in Illinois, Indiana, Ohio, Kentucky, or Tennessee? Also, were you diagnosed under 18 or as an adult?

Your answer

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yaisitis

1y ago

Got diagnosed in Indy at 22~ I was born with and had surgery at a young age for abducted thumb too tho and now that's actually considered an EDS type itself so I was kind of diagnosed as a child but not really lol
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Flower_Pup

1y ago

I was diagnosed by my primary doctor at 19. I’m in Gastonia, NC.
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Student_girl

1y ago

In MN at age 16
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EDS4Life

1y ago

In TN as an Adult!
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InsidiousAnomaly

1y ago

Not in those states but I was 15/16 when I was diagnosed with hEDS in California. Wish I had more info elsewise.
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TotalSpaceCase

1y ago

I was diagnosed in Kentucky at UK when I was 19!
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Alux

1y ago

wait who diagnosed you at UK? i’m from Lex but i’ve had bad luck with the doctors here
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curtain

1y ago

Instead of investigating, doctors in Tennessee said that nothing was wrong with me, and my rheumatologist diagnosed me with fibromyalgia. I ended up moving and getting diagnosed in North Carolina.
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EDSzebra

1y ago

I was dx at Cincy Children’s by the geneticists in the connective tissue clinic. At that time, I was ~17. Feel free to DM me if you have any questions or want more in depth info! 😊
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Abbe

1y ago

Yes, Cincinnati childrens. I think I was about 14
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Alux

1y ago

who did you see in Cinci Childrens? I go there for my PRS but i may need to seek them out for hEDS diagnosis too LOL
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Leeeee

1y ago

I was diagnosed at Erlanger Hospital in Chattanooga Tennessee! They are an amazing group and I was diagnosed when I was 12!! ❤️

The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.

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