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catdad22

636d

Has anyone gotten diagnosed with EDS in Illinois, Indiana, Ohio, Kentucky, or Tennessee? Also, were you diagnosed under 18 or as an adult?

Top reply
    • yaisitis

      537d

      Got diagnosed in Indy at 22~ I was born with and had surgery at a young age for abducted thumb too tho and now that's actually considered an EDS type itself so I was kind of diagnosed as a child but not really lol

    • yaisitis

      537d

      Got diagnosed in Indy at 22~ I was born with and had surgery at a young age for abducted thumb too tho and now that's actually considered an EDS type itself so I was kind of diagnosed as a child but not really lol

    • Flower_Pup

      537d

      I was diagnosed by my primary doctor at 19. I’m in Gastonia, NC.

    • Student_girl

      537d

      In MN at age 16

    • EDS4Life

      543d

      In TN as an Adult!

    • InsidiousAnomaly

      545d

      Not in those states but I was 15/16 when I was diagnosed with hEDS in California. Wish I had more info elsewise.

    • TotalSpaceCase

      617d

      I was diagnosed in Kentucky at UK when I was 19!

      • Alux

        617d

        @TotalSpaceCase wait who diagnosed you at UK? i’m from Lex but i’ve had bad luck with the doctors here

        • TotalSpaceCase

          617d

          @Alux Dr. Carol with UK UHS. I was passed around by a bunch of UHS doctors for problems with my SI joints until I met with her and she diagnosed me.

    • curtain

      618d

      Instead of investigating, doctors in Tennessee said that nothing was wrong with me, and my rheumatologist diagnosed me with fibromyalgia. I ended up moving and getting diagnosed in North Carolina.

    • EDSzebra

      619d

      I was dx at Cincy Children’s by the geneticists in the connective tissue clinic. At that time, I was ~17. Feel free to DM me if you have any questions or want more in depth info! 😊

    • Abbe

      624d

      Yes, Cincinnati childrens. I think I was about 14

      • Alux

        624d

        @Abbe who did you see in Cinci Childrens? I go there for my PRS but i may need to seek them out for hEDS diagnosis too LOL

        • Abbe

          545d

          @Alux lmao I took so long to respond but I honestly don’t remember… I had one visit in the genetics department that diagnosed me. Rheumatology never treated me for my EDS. I saw one a handful of times for my RSD/CRPS

        • Alux

          624d

          @Alux u don’t have to answer if u don’t want to but i was just wondering who in their rheumatology department was actually helpful for this lol

    • Leeeee

      625d

      I was diagnosed at Erlanger Hospital in Chattanooga Tennessee! They are an amazing group and I was diagnosed when I was 12!! ❤️

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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