Hello, it took 21 years to get my diagnosis. I took my mum to my appointment with rumotology which turned out to be a blessing as they looked at her then me and decided it was genetic. I've personally not had any gene testing as the Dr told me they aren't sure the exact gene to look for. Hope this helps x

she also asked if i had any scars that had developed oddly, which i do, and asked if i bruise weirdly, and I also do

My experience was the same. My primary did the same flexibility tests and was positive I have it. She moved her practice and now my new primary doesn't know anything about EDs and is sending me to a specialist for hereditary testing.

It took me years to get diagnosed. I was diagnosed with heds using the Beighton scale (bendy show and tell), and other clinical criteria, and confirmed based on surgical reports of what my tissue looked like.