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rj.crow

528d

I finally have a referral to a geneticist who tests for EDS. They haven’t called me yet and I can imagine they have a decent wait, but holy crap it’s finally happening!! My doctor and I have been trying to get my insurance to cover this for 2 years. Idk y’all I’m just so relieved.

Top reply
    • rj.crow

      525d

      @Student_girl I’m excited to finally have the answer. My doctor looked me in the eyes and told me I’m not crazy and I straight up sobbed 😂

    • Student_girl

      527d

      Getting diagnosed is heartbreaking f and a giant releif at the same time. I got diagnosed almost 3 years ago. It is heartbreaking to know for sure that what’s wrong with you is forever, but a releif to know you’re not crazy. Good luck!

      • rj.crow

        525d

        @Student_girl I’m excited to finally have the answer. My doctor looked me in the eyes and told me I’m not crazy and I straight up sobbed 😂

    • JustRachelle

      528d

      Is this something you brought up to your doctor or did they recommend? I think I need to have this testing done as well.

      • rj.crow

        525d

        @JustRachelle I sort of gently guided my doctor to the conclusion that I probably have EDS. Thankfully that didn’t take long and as it turns out she really respects the research I did. You could absolutely ask for the referral and if they refuse, tell them to mark that in your chart and get a printed copy. It may take a bit for insurance to be willing to cover it if you haven’t had autoimmune tests, so a rheumatologist could help with that.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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