'%3e%3cpath%20d='M18.1275%2019.4574H9.64406L7.23721%2025.7665H0.535156L9.55128%203.73926H18.2836L27.2834%2025.7676H20.5333L18.1275%2019.4574ZM13.7264%208.01919C13.2352%209.40217%2012.5803%2011.177%2012.052%2012.5971L11.3163%2014.5793H16.4575L15.7185%2012.5655C15.2087%2011.1639%2014.5516%209.3978%2014.0539%208.01919H13.7264Z'%20fill='%23222222'/%3e%3cpath%20d='M29.5195%203.10938H35.5612V25.7665H29.5195V3.10938Z'%20fill='%23222222'/%3e%3cpath%20d='M39.5898%2010.0332H45.6479V25.7678H39.5898V10.0332Z'%20fill='%23222222'/%3e%3cpath%20d='M49.6562%203.10938H55.6979V16.8923L55.7765%2016.9075L60.4025%2010.0319H67.5139L61.6141%2017.8364L67.861%2025.7665H60.576L55.7765%2018.8439L55.6979%2018.8592V25.7665H49.6562V3.10938Z'%20fill='%23222222'/%3e%3cpath%20d='M79.9824%2019.2785C79.6986%2020.2576%2078.7609%2020.9627%2077.5133%2021.157C75.8072%2021.4234%2074.4865%2020.5992%2073.9669%2018.7011L85.5121%2016.8978C84.9784%2011.6464%2081.0925%208.98853%2075.8531%209.80719C70.474%2010.6477%2067.4799%2014.5226%2068.221%2019.2643C68.9589%2023.9907%2072.9834%2026.8178%2078.3942%2025.9729C82.9743%2025.2579%2086.1594%2022.2791%2086.1136%2018.3147L79.9824%2019.2785ZM76.5866%2013.7062C77.9074%2013.5686%2078.8985%2014.1341%2079.3995%2015.2485L73.9822%2015.8107C74.3566%2014.61%2075.2604%2013.8437%2076.5866%2013.7062Z'%20fill='%23222222'/%3e%3cpath%20d='M42.6056%207.87737C40.3156%207.87737%2038.5898%206.37214%2038.5898%204.37571C38.5898%202.38147%2040.3167%200.878418%2042.6056%200.878418C44.8946%200.878418%2046.6214%202.38147%2046.6214%204.37571C46.6225%206.37214%2044.8957%207.87737%2042.6056%207.87737Z'%20fill='%23222222'/%3e%3c/g%3e%3cdefs%3e%3cclipPath%20id='clip0'%3e%3crect%20width='85.5768'%20height='25.243'%20fill='white'%20transform='translate(0.535156%200.878418)'/%3e%3c/clipPath%3e%3c/defs%3e%3c/svg%3e)
Join
Explore Over 11,000+ Conditions, Medications, and Symptoms.
Get a personalized feed by signing up for free.
rj.crow's Post
rj.crow
1y ago
Finally getting tested for EDS after 2 years of trying!
I finally have a referral to a geneticist who tests for EDS. They haven’t called me yet and I can imagine they have a decent wait, but holy crap it’s finally happening!! My doctor and I have been trying to get my insurance to cover this for 2 years. Idk y’all I’m just so relieved.
Your answer
Student_girl
1y ago
Getting diagnosed is heartbreaking f and a giant releif at the same time. I got diagnosed almost 3 years ago. It is heartbreaking to know for sure that what’s wrong with you is forever, but a releif to know you’re not crazy. Good luck!
rj.crow
1y ago
I’m excited to finally have the answer. My doctor looked me in the eyes and told me I’m not crazy and I straight up sobbed 😂
'%3e%3cpath%20d='M19.9989%2017.668C29.9347%2017.668%2038%2025.7333%2038%2035.669V47.9566C38%2053.2994%2033.6627%2057.6367%2028.3199%2057.6367H11.6801C6.3373%2057.6367%202%2053.2994%202%2047.9566V35.669C2%2025.7333%2010.0653%2017.668%2020.0011%2017.668H19.9989Z'%20fill='%23FFC1C1'/%3e%3cpath%20d='M27.8832%2012.2617H11.4798C10.0092%2012.2617%208.81696%2013.4539%208.81696%2014.9246C8.81696%2016.3953%2010.0092%2017.5875%2011.4798%2017.5875H27.8832C29.3538%2017.5875%2030.5461%2016.3953%2030.5461%2014.9246C30.5461%2013.4539%2029.3538%2012.2617%2027.8832%2012.2617Z'%20fill='%23FF6D90'/%3e%3cpath%20d='M19.6815%2012.2606C20.858%2012.2606%2021.8118%2011.3068%2021.8118%2010.1303C21.8118%208.95377%2020.858%208%2019.6815%208C18.505%208%2017.5512%208.95377%2017.5512%2010.1303C17.5512%2011.3068%2018.505%2012.2606%2019.6815%2012.2606Z'%20fill='%23FFC1C1'/%3e%3c/g%3e%3cpath%20fill-rule='evenodd'%20clip-rule='evenodd'%20d='M24.0178%2028.0116C24.6677%2027.9246%2025.2715%2028.3376%2025.3662%2028.9339C25.3863%2029.0603%2025.4778%2029.3091%2025.6667%2029.5059C25.8226%2029.6683%2026.0595%2029.8174%2026.5%2029.8174C26.9405%2029.8174%2027.1774%2029.6683%2027.3333%2029.5059C27.5222%2029.3091%2027.6137%2029.0603%2027.6338%2028.9339C27.7285%2028.3376%2028.3323%2027.9246%2028.9822%2028.0116C29.6321%2028.0985%2030.0822%2028.6525%2029.9874%2029.2489C29.9112%2029.7283%2029.6561%2030.3881%2029.1181%2030.9485C28.5471%2031.5434%2027.6769%2032%2026.5%2032C25.3231%2032%2024.4529%2031.5434%2023.8819%2030.9485C23.3439%2030.3881%2023.0888%2029.7283%2023.0126%2029.2489C22.9178%2028.6525%2023.3679%2028.0985%2024.0178%2028.0116Z'%20fill='%23453D3D'%20stroke='%23FFC1C1'%20stroke-width='0.5'%20stroke-linecap='round'/%3e%3cpath%20fill-rule='evenodd'%20clip-rule='evenodd'%20d='M11.0178%2028.0116C11.6677%2027.9246%2012.2715%2028.3376%2012.3662%2028.9339C12.3863%2029.0603%2012.4778%2029.3091%2012.6667%2029.5059C12.8226%2029.6683%2013.0595%2029.8174%2013.5%2029.8174C13.9405%2029.8174%2014.1774%2029.6683%2014.3333%2029.5059C14.5222%2029.3091%2014.6137%2029.0603%2014.6338%2028.9339C14.7285%2028.3376%2015.3323%2027.9246%2015.9822%2028.0116C16.6321%2028.0985%2017.0822%2028.6525%2016.9874%2029.2489C16.9112%2029.7283%2016.6561%2030.3881%2016.1181%2030.9485C15.5471%2031.5434%2014.6769%2032%2013.5%2032C12.3231%2032%2011.4529%2031.5434%2010.8819%2030.9485C10.3439%2030.3881%2010.0888%2029.7283%2010.0126%2029.2489C9.91782%2028.6525%2010.3679%2028.0985%2011.0178%2028.0116Z'%20fill='%23453D3D'%20stroke='%23FFC1C1'%20stroke-width='0.5'%20stroke-linecap='round'/%3e%3c/svg%3e){kind=small}
JustRachelle
1y ago
Is this something you brought up to your doctor or did they recommend? I think I need to have this testing done as well.
rj.crow
1y ago
I sort of gently guided my doctor to the conclusion that I probably have EDS. Thankfully that didn’t take long and as it turns out she really respects the research I did. You could absolutely ask for the referral and if they refuse, tell them to mark that in your chart and get a printed copy. It may take a bit for insurance to be willing to cover it if you haven’t had autoimmune tests, so a rheumatologist could help with that.
The content in this post is not intended to be a substitute for professional medical advice, diagnosis, or treatment. Always seek the advice of your physician or other qualified health provider with any questions you may have regarding a medical condition.
Alike is a transformative platform that goes beyond just bringing together patients; it meticulously connects individuals based on multiple critical factors, such as age, gender, comorbidities, medications, diet, and more, fostering a community of knowledge, support and empathy.
© 2020-2024 Alike, Inc