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BatlexanderManilton

650d

What's been the toughest thing about having EDS? What are your best coping methods?

Top reply
    • wise

      647d

      tbh it's mostly just annoying at this point. I don't have the strength in my fingers to do anything anymore, I can't stand or sit without popping out a hip, my knees are constantly moving and grooving without me, especially if I turn and forget to turn my feet with the rest of me. I'm way past the point of the actual dislocations hurting, but man do they get annoying after a while. my partner also has EDS and so do both of our moms, so I'm not alone in my experience at least

    • wise

      647d

      tbh it's mostly just annoying at this point. I don't have the strength in my fingers to do anything anymore, I can't stand or sit without popping out a hip, my knees are constantly moving and grooving without me, especially if I turn and forget to turn my feet with the rest of me. I'm way past the point of the actual dislocations hurting, but man do they get annoying after a while. my partner also has EDS and so do both of our moms, so I'm not alone in my experience at least

    • Evie1997

      648d

      The pain is obviously one of the hardest things. Recently it's been hard for me realizing all my friends are getting married and I am here wondering if any man will love me like this.

      • Heaven197987

        648d

        @Evie1997 it's not about getting married first take care of yourself be happy until you meet the right person

    • LemonZesta

      650d

      the toughest part has been both the dislocations and also the mild but ever-present fear of dislocations. I’d say sometimes the fighting to be seen as validly disabled and needing accommodations can be scary. I worry I’ll make situations harder for myself if I ask for help or extra patience and understanding from people

    • Phoenixwingfeather

      650d

      The pain and the feeling of the joint move out of the socket, thankfully mine don’t stay out or dislocate completely

    • BatlexanderManilton

      650d

      What kind of EDS do you have?

      • Heaven197987

        649d

        @BatlexanderManilton I don't know

    • Heaven197987

      650d

      The pain and dislocations, breathing deeply through it, I smoke weed too help

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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