EDS and Cold Hands and Feet: Is it Common?

Me!! My feet and hands are always cold 😂 i get made fun of for it by my family and friends constantly!🤣

yes!!! but i would definitely look into POTS and raynauds. both are common in EDS and can cause these symptoms. i have both and my limbs are always freezing cold!

I would say it’s worth looking into then!

Definitely look into POTS. That sounds a lot like it tbh.

I have the dizziness, the fatigue when standing up for long periods of time and high heart rate but I'm not sure about the other symptoms

Possibly! POTS is a common comorbidity of EDS. Does your heart rate increase upon standing? Do you get dizzy or lightheaded while standing, upon standing, or changing position? Does standing for long periods of time cause fatigue and pain? Do your feet/legs turn red or swollen from blood pooling while standing? Does your blood pressure rise or drop with standing? Dysautonomia international is a good website to find information

Do you think it's possible I have POTS?

This happens to me! I think it’s from my POTS (POTS causes temperature dysregulation) and Raynaud’s.

even in the summers, ill wear hoodies because im cold

Same I'm always cold

im not sure if its common, but im ALWAYS cold. my temperature is usually around 96 degrees.