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Flint

777d

Is there anybody else with EDS who has constantly cold hands and feet cuz mine seem to always be cold no matter what I do. Like is this a common thing with EDS?

Top reply
    • coopty

      774d

      Me!! My feet and hands are always cold 😂 i get made fun of for it by my family and friends constantly!🤣

    • coopty

      774d

      Me!! My feet and hands are always cold 😂 i get made fun of for it by my family and friends constantly!🤣

    • gcankrom

      776d

      yes!!! but i would definitely look into POTS and raynauds. both are common in EDS and can cause these symptoms. i have both and my limbs are always freezing cold!

    • UnluckyUnicorn

      777d

      I would say it’s worth looking into then!

    • royalty

      777d

      Definitely look into POTS. That sounds a lot like it tbh.

    • Flint

      777d

      I have the dizziness, the fatigue when standing up for long periods of time and high heart rate but I'm not sure about the other symptoms

    • UnluckyUnicorn

      777d

      Possibly! POTS is a common comorbidity of EDS. Does your heart rate increase upon standing? Do you get dizzy or lightheaded while standing, upon standing, or changing position? Does standing for long periods of time cause fatigue and pain? Do your feet/legs turn red or swollen from blood pooling while standing? Does your blood pressure rise or drop with standing? Dysautonomia international is a good website to find information

    • Flint

      777d

      Do you think it's possible I have POTS?

    • UnluckyUnicorn

      777d

      This happens to me! I think it’s from my POTS (POTS causes temperature dysregulation) and Raynaud’s.

    • luxdelora

      777d

      even in the summers, ill wear hoodies because im cold

    • Flint

      777d

      Same I'm always cold

    • luxdelora

      777d

      im not sure if its common, but im ALWAYS cold. my temperature is usually around 96 degrees.

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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