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lola_

384d

correct me if im wrong. but i seem to be noticing how so many of us have eds.. but not too much overlap of symptoms 😅 like we've obviously had eds our whole lives but the ways it interferes with our lives is so different. even when we want to get help from other people w our condition its hard cause we have a hard time relating to symptoms that we dont have. I came on this app to see more people like me, w my symptoms, but having eds doesnt even let us have that luxury of understanding one another. it kind of helps me realize why we're all struggling in the health system.. doctors dont have a place for us or answers really. I feel like the only common thing about us is that we're all a little lost and confused and mostly just coping w it. idk im glad to see we're confused together and its not just me 😂🥴🥰🥰🥰 (or maybe it is just me hahahaha)

    • WolfieWolf

      384d

      yeah, EDS is weird and wacky spectrum of annoying pain, but at least we can get together to suggest help for any symptoms that are close enough lol

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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