My Dysautonomia Specialist Appointment: A New Diagnosis and Financial Worries

Today I had my dysautonomia specialist appointment. I was really nervous but I like the clinic team and they actually seemed to understand what I was going through. Unfortunately I scored high on a hypermobility-EDS scale so that’s something new I hadn’t considered. I’m being sent for genetic testing and an autoimmune panel to try to figure out what is causing some symptoms. I’m generally nervous primarily because the testing is going to be so expensive. The tilt-table test is $2,000+, each appointment is $200+, blood work was $200, and I don’t even want to imagine how expensive generic testing will be. I’m glad I found a treatment team that can help me but I feel helpless when it comes to the expenses. Does anyone know of any medical grants I can apply for? Or any financial assistance programs for college youths? I appreciate any help 💕