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Seizures with Dysautonomia: Seeking Advice

outpickingdandelions

377d

Does anyone else with dysautonomia get seizures? I've had them for a few months now and they aren't presenting like epilepsy (have an EEG scheduled in a month), and I'm not sure what could be going on. Psychogenic seizures were discussed but I'm also having some other strange neuro symptoms.

8

12

12

Disorder of Autonomic Nervous System

Psychogenic non epileptic seizure

Postural Orthostatic Tachycardia Syndrome (POTS)

Recurrent Syncope

Syncope

Electroencephalogram

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Top reply
    • fndandme

      344d

      ask about fnd (functional neurological disorder). it could be that!

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      Reply
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    • fndandme

      344d

      ask about fnd (functional neurological disorder). it could be that!

      0

      Reply
    • GlutenFreeGirlie

      365d

      I get zone outs that people have said look like absence seizures but nothing more?

      0

      Reply
    • kateafranklin

      373d

      Yes

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      Reply
      • kateafranklin

        373d

        @kateafranklin But I do not have epilepsy. I have psychogenic nobepileptic seizures as a manifestation of functional neurological disorder

        3

        Reply
    • royalty

      373d

      Going through the same exact thing and am pushing for a PANS/PANDAS test because of all my other neuropsychiatric symptoms

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      Reply
    • lillia

      373d

      yes I had a non epileptic seizure last November. They can be very scary but make sure you let your doctor know! Mine told me it was normal, but helped to know what to do and how to tell them apart from fainting.

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      Reply
    • tallgirl22

      377d

      I’ve dealt with similar but mine present as absent seizures and do not show up on EEG. It has been assumed they are from BP drops and lapses in consciousness. I’ve seen a few people with POTS who also have “convulsive syncope”. Im no sure if this may be what you are experiencing but may be worth looking into and asking doctors about.

      2

      Reply
      • outpickingdandelions

        368d

        @tallgirl22 Thanks for the info! I don't think convulsive syncope matches my symptoms because I am typically conscious and partially aware of what happens.

        0

        Reply
    • LIGHTINTHEDARK

      377d

      I’m going through the same exact thing and have been desperately looking for answers for 10 years now. It’s so confusing and so painful! I hope you find relief soon because it’s extremely difficult to deal with 🥺❤️

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      Reply
    • Flightlessbird

      377d

      Really look into the psychogenic diagnoses. I was diagnosed with that and told "if you just accept it, it will go away" Turns out I have severe cervical instability which is causing a movement disorder called paroxysmal kinesigenic dyskinesia. It appears as episodic seizures but doesn't show up on any EEG scans.

      3

      Reply
      • LIGHTINTHEDARK

        377d

        @Flightlessbird May I ask if you can message me? I have a few questions

        0

        Reply
      • outpickingdandelions

        377d

        @Flightlessbird Because I have all these neuropsychiatric symptoms I'm pushing to get tested for basal ganglia encephalopathy, but first I'm going to see how the EEG turns out.

        2

        Reply

☝ This content is generated by our users and it is not a substitute for professional medical advice. Please consult with your physician before making any medical decision

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